Together for the 49,000+ Help shape our strategy for children's palliative care (Phase 1 survey)

Dear Friend,

Together for Short Lives wants to improve the quality of life and the quality of end of life care for children and young people with life-limiting and life-threatening conditions. We want to ensure that their families are supported, informed and empowered on their journey with their child. And we want to help achieve the best for those individuals and organisations providing vital information, care and support to children and families, whether that be in the community, in hospice or in hospital.

To achieve this we are consulting on our what our strategy for 2018 and beyond should be and we are asking for as many views as possible to help shape that strategy.

We want to understand what you think great care and support looks like and what our role could be in helping that happen.

This short survey is a chance to share your thoughts and ideas with us – we are planning to keep this survey open until 17 May 2017. Your feedback will inform our draft strategy, which you will also have an opportunity to give your views on in the late Summer.

All best,

Barbara Gelb OBE,
CEO for Together for Short Lives

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* 1. Please tell us which of the following descriptions best applies to you. (Tick all that apply)

I am a young person with a life-limiting or life-threatening condition

A member of my immediate family is a child or young person with a life-limiting or life-threatening condition

I work for a public sector organisation in children's palliative care

I work for a children's hospice which provides children's palliative care

I work for another type of charity which provides care or support to seriously ill children

I work in a policy making environment that might affect children's palliative care

I help fund Together for Short Lives, either individually or through my organisation

Other (please specify)

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* 2. What does great children’s palliative care look like in 2028?

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* 3. What needs to happen in order to get there?

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* 4. What could Together for Short Lives’ role be in achieving that?

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* 5. If you would like, please tell us a little bit about yourself

First name

Surname

Organisation

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* 6. We may like to ask you follow up questions on your survey responses. If you would be willing for us to contact you for that purpose please enter your email address below.

Thank you for taking the time to share your thoughts with us – we really appreciate it. Do share this survey with colleagues, supporters and stakeholders. We'll be posting blogs, providing regular updates through Facebook /togetherforshortlives and Twitter @Tog4ShortLives or via our website at www.togetherforshortlives.org.uk