As a partner or parent of an adult living with SMA or other relative of a child / young person / adult living with SMA, what is your view of the importance of access to psychological support for people affected by the condition?
The All Party Parliamentary Group for Muscular Dystrophy (APPG for MD) is conducting a six-month inquiry into the need for and access to psychological support for people affected by muscle-wasting conditions - this includes SMA. We want to make sure your views are heard.
We will collate all the replies we receive and will not use any of your personal identifying information in the summary unless you have given us permission to do so. We will share the results with Muscular Dystrophy UK who will collate all the replies they receive and report to the APPG for MD. We will also publish the results via our website
You can say as much or as little as you like. We expect the survey to take about 10 - 30 minutes to complete.
Closing date for replies is Friday 27th April 2018