Your experiences as a parent or guardian 

It's important that we, and others, understand what it’s been like for the UK's  PH community during the COVID-19 pandemic. As the parent or guardian of a child with pulmonary hypertension, can you spare some time to help?
You can remain anonymous if you wish.
This survey should take around 5 minutes to complete. Thank you for your help. 

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* 1. What is the gender of your child? 

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* 2. What is your child's age in years?

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* 3. How many years has your child had PH for?
(If less than a year, please enter the number of months as a decimal, eg 6 months would be 0.5)

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* 4. Did your child receive their PH diagnosis after March 2020? 

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* 5. How would you describe your child's experience of the pandemic? 

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* 6. How would you describe your experience of the pandemic as a parent / guardian? 

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* 7. What has caused you the greatest distress during the pandemic? (please use the arrowed boxes to rank in order, with number 1 being what has caused you the most distress)

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* 8. How would you describe the support from your child's specialist PH team throughout the pandemic? 

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* 9. How would you describe the support from your child’s school throughout the pandemic?

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* 10. Do you have any comments relating to any of the questions on this survey?

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* 11. As part of this piece of research, we would like to conduct telephone interviews to obtain more detailed information. If you would be happy to be contacted by the PHA UK for this purpose, please provide your contact details below.
(Please be assured that your responses to this survey and any follow-up questions will remain anonymous. The contact details you provide will be used only for the purpose of this research). 

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