Priorities in Research

The NET Patient Foundation and the Association for Multiple Endocrine Neoplasia Disorders (AMEND) are developing a joint research strategy to ensure that each charity’s research funds are directed towards the most appropriate areas of research. As a patient, your feedback is vital in helping us to achieve a strategy that is fit for purpose, realistic and most importantly, based on the priorities of those affected by neuroendocrine/endocrine tumours. Please take a few minutes to share your thoughts with us about the type of research that you feel should be a priority. Thank you.

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* 1. Have you ever been involved in medical research project. This could be
testing a new medicine through to completing a questionnaire.
You would have signed a consent form.

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* 2. If yes please tick all relevant research projects you have been involved in:

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* 3. If you were offered the chance to take part in another medical research
project, which of the following would you be happy to take part in:

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* 4. If you would like to share with us why you would not be happy to take part in any of the above, please use the comment box below.

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* 5. Thinking about your condition, prioritise the following research areas that you feel are important to you:

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* 6. Thinking about your condition, prioritise the following research areas that you feel are important to you:

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* 7. Thinking about your condition, prioritise the following research areas that you feel are important to you:

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* 8. Thinking about your condition, prioritise the following research areas that you feel are important to you:

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* 9. A little bit about you: What is your age range?

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* 10. What is your gender?

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* 11. What is your primary neuroendocrine/endocrine tumour type? Tick all that apply

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