Do I have to take part?
It is up to you to decide whether to take part. If you do decide to participate, you will be able to keep this information sheet. You will be asked to check a box on the online survey to indicate that you give consent for your data to be used anonymously. If you decide to take part you are still free to withdraw at any time and without giving a reason.
I am interested in taking part, what do I do next?
If you agree to the questions at the end of this survey, you will find a link to the initial questionnaire. Within 24 hours, you will also be emailed this link, so you can take a break first if you wish. You will also receive a copy of this information sheet, some instructions which will tell you how to download the app and start the sessions and a sheet with some useful contact details. If there are any problems, you can email Helen Croxon using this email address: P2508772@my365.dmu.ac.uk.
What if I agree to take part and then change my mind?
If you start completing the survey and then change your mind, you do not need to complete it. There is no obligation to take part.
If you complete the initial survey and start the Headspace sessions but decide not to continue, you may withdraw without giving a reason. However, it would be helpful if you would be willing to complete a short follow-up survey to say why you didn’t want to continue because this is a useful part of the research. One of the aims is to find out whether it is easy for people to access the sessions and whether they feel motivated to continue until the end.
If you would like to withdraw any data you have already given when you decide to stop participating, you can request this at the time of withdrawal by emailing Helen Croxon using this email address: P2508772@my365.dmu.ac.uk. After the date of your withdrawal, it is not possible to request the destruction of data as it may have already been used anonymously as part of the analysis.
What is the procedure that is being tested?
The study will test the ease of downloading and using the Headspace app to see whether this is suitable for most people to do at home on their own.
What are the possible disadvantages and risks of taking part?
Headspace has over 31 million users and is considered to be harmless, whether you personally find it useful or not. You do not need to give your bank details or sign up to a free trial in order to take part as these sessions (the 'Basics' course) are free. If you feel that you have additional concerns during the study (for example about your MS symptoms or levels of depression, anxiety or fatigue) you can consult your GP or MS nurse in the usual way. You will also be given the contact details of some websites and helplines which you may find useful. However, you should consider carefully whether you would find it difficult to complete online surveys and use a smartphone app due to MS symptoms or mental health difficulties.