Your experiences

It's important that we, and others, understand what it’s been like for the UK's PH community during the COVID-19 pandemic. Can you spare some time to help?
Please fill in this survey if you have a diagnosis of pulmonary hypertension. It takes around 15 minutes and you can remain anonymous if you wish. Thank you for your time. 

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* 1. What is your gender?

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* 2. What is your current age in years?

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* 3. What type of PH do you have?

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* 4. How long has it been since your diagnosis of PH, in years?
(If less than a year, please state in decimals, eg. 6 months would be 0.5)

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* 5. Did you receive your PH diagnosis after March 2020?

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* 6. What is the first part of your postcode?
(eg. HU15 or S36)

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* 7. Did you follow shielding advice during the first lockdown? (March to May 2020)

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* 8. Did you follow shielding advice during the second lockdown? (November 2020)

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* 9. Did you follow shielding advice during the third lockdown? (January to April 2021)

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* 10. Everyone with pulmonary hypertension was advised to shield. Do you feel that you personally needed to?

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* 11. Overall, do you think asking those clinically extremely vulnerable to COVID-19 to shield was the right thing to do?

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* 12. Do you have any comments relating to any of the questions so far? 

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* 13. Do you feel your PH has worsened as a result of the pandemic?

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* 14. Do you feel your general health has worsened as a result of the pandemic?

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* 15. Do you feel your fitness / physical activity levels have worsened as a result of the pandemic?

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* 16. Has your weight changed as a result of the pandemic?

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* 17. Have you missed any scheduled medical appointments since the start of the pandemic?
(For example scans, blood tests, or other appointments that require you to leave the house. This does not include appointments that have been carried out over the phone / internet instead)

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* 18. If you answered 'yes' to question above, which appointments have you missed?

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* 19. If you have missed an appointment/s, what was the reason/s? (Please mark all that apply)

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* 20. Have you had COVID-19? 

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* 21. If you had a positive COVID-19 test result, did you require hospital treatment?

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* 22. Have you had a COVID-19 vaccination?

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* 23. How has the pandemic affected your desire to look after your general health and wellbeing?
(please select all that apply)

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* 24. How easy have you found it to access support from GP services (such as appointments, advice or prescriptions) during the pandemic?

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* 25. How easy have you found it to access support from your specialist PH centre during the pandemic?

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* 26. Do you have any comments relating to any of the last few questions?

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* 27. Have you experienced any symptoms of the following since the start of the pandemic (that you didn’t experience previously)?
Please tick all that apply.

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* 28. Have you received treatment (eg. therapy or medication) for any of the following for the first time since the start of the pandemic?

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* 29. How have you felt about the restrictions on everyday life that have been imposed since the start of the pandemic? (please pick the statement you relate to most)

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* 30. How have you felt about being classed as ‘clinically extremely vulnerable’ during the pandemic? (please pick the statement you relate to most)

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* 31. Do you have any comments relating to any of the last few questions? 

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* 32. Since the start of the pandemic, have you drunk more or less alcohol?

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* 33. Since the start of the pandemic, have you smoked more or less cigarettes?

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* 34. Have your eating habits changed as a result of the pandemic?

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* 35. How has the pandemic changed how often you use the internet / online technology? (please choose the statement that best describes your situation)

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* 36. How has the pandemic changed how confident you are in using the internet / online technology? (please choose the statement that best describes your situation)

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* 37. How easy do you find using the internet / online technology?

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* 38. What do you expect your internet / online technology usage to look like over the next 12 months?

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* 39. Do you have any comments relating to the last few questions? 

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* 40. How do you feel about restrictions lifting and ‘normal life’ resuming? (please choose the statement you relate to most)

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* 41. Do you feel you need support (outside of family and friends) to re-engage with ‘normal life’ post-pandemic? (Please mark all that apply)

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* 42. Where do you feel this support should come from?

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* 43. Has the pandemic changed the way you feel about the future in general? (please choose the statement that best applies to you)

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* 44. Do you have additional comments relating to any part of this survey? 

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* 45. (Optional) What is your ethnic group? Please choose one option that best describes your ethnic group or background

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* 46. As part of this piece of research, we would like to conduct telephone interviews to obtain more detailed information. If you would be happy to be contacted by the PHA UK for this purpose, please provide your contact details below. 
Please be assured that your responses to this survey and any follow-up questions will remain anonymous. The contact details your provide will be used only for the purpose of this research.

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