Survey for Action for Brain Injury Week 2019

This survey is being conducted by Headway – the brain injury association as part of our Action for Brain Injury Week campaign, Brain Drain: Wake up to fatigue!

It has been designed to be completed by brain injury survivors.

We would like to find out about the long term ‘pathological’ fatigue (or extreme tiredness) that is sometimes caused by brain injury.

Please try to answer the questions honestly. All responses will be kept anonymous, although you will have the option at the end of the survey to share your individual experiences of fatigue to support our campaign.
 
This survey will close on 26 April 2019 and the results will be published in May 2019.
 
Thank you!

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* 1. What is your name? (optional)

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* 4. What caused your brain injury?

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* 5. How long were you unconscious/in a coma for?

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* 6. Please review the following statements, both positive and negative, and state whether you agree or disagree with them:

  Strongly disagree Slightly disagree Neutral Slightly agree Strongly agree
I am optimistic about my future despite my fatigue
I socialise less because of my fatigue
I am often accused of being lazy or not trying hard enough
Fatigue has a negative impact on my life
People in my life do not understand my fatigue
I have found ways to manage my fatigue to reduce its impact on my life
My fatigue effects my behaviour and emotions
I need/needed help to understand the effect fatigue has on me
Fatigue is the most debilitating effect of my brain injury
I usually have enough energy to complete ordinary everyday activities (e.g. eating, bathing, preparing food)
My life would be improved if people had a better understanding of my fatigue

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* 7. Please tell us what impact fatigue has had on the following aspects of your life:

  Much worse Worse Not changed Better Much better
Self-esteem
Employment
Home life
Social life
Romantic relationships
Financial circumstances
Independence
Rehabilitation and recovery

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* 8. Do the following people in your life have a good understanding of how fatigue affects you?

  Yes No Not sure Not applicable
Spouse/partner
Other family
Friends
Employer
Colleagues
GP
Other medical professionals

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* 9. Do you think you have been unfairly judged or treated as a result of people not understanding your brain injury-related fatigue?

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* 10. Which people/services have helped you to cope with fatigue? Check all that apply.

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* 11. If a Headway group/branch has supported you, please tell us which one:

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