End of Life Care

Your experience

The NHS in this area is looking at the way people are cared for near the end of their lives.

We want to work with patients, carers, people who have been bereaved, and staff to develop a clear vision of what excellent care looks like, and what changes we must make to improve support for patients and carers.

This survey is the first step in that process - your views will help us to identify the areas we must focus on first.

We want to know how well you feel you were supported (as a patient, or a carer) throughout your experience of end of life care - please think about care given at all stages, from diagnosis onwards.

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* 1. Thinking about how you (or your loved one) were supported or cared for whilst living in your own home - all services, including GPs, nurses, home visits, and so on - please give an overall rating of your experience. (1 is very poor, 10 is excellent)

Not applicable / don't know

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* 2. If your experience of care or support received whilst in your own home (again, thinking about the whole range of services) was anything less than excellent, please tell us what would be needed to make your score a '10'.

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* 3. Thinking about how you (or your loved one) were supported, or cared for whilst under the care of hospital staff, please give an overall rating of your experience. (1 is very poor, 10 is excellent)

Not applicable / don't know

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* 4. If your experience of support or care whilst under the care of hospital staff was anything less than excellent, please tell us what would be needed to make your score a '10'.

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* 5. Thinking about how you (or your loved one) were cared for by hospices (either staying there, or using other services provided by hospice staff), please give an overall rating of your experience. (1 is very poor, 10 is excellent)

Not applicable / don't know

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* 6. If your experience of hospice care (either staying there, or using other services provided by hospice staff) was anything less than excellent, please tell us what would be needed to make your score a '10'.

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* 7. Thinking about how you (or your loved one) were cared for in a nursing home or a care home, please give an overall rating of your experience. (1 is very poor, 10 is excellent)

Not applicable / don't know

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* 8. If your experience of care in a care home or nursing home was anything less than excellent, please tell us what would be needed to make your score a '10'.

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* 9. Thinking about the whole range of services supporting you (or your loved one) - how well did they communicate with each other and work together? Please give an overall rating of your experience. (1 is very poor, 10 is excellent)

Not applicable / don't know

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* 10. If your experience of services communicating with each other and working together was anything less than excellent, please tell us what would be needed to make your score a '10'.

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* 11. For carers only... Thinking about the support you received, including bereavement support if relevant, please give an overall rating of your experience. (1 is very poor, 10 is excellent)

Not applicable / don't know

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* 12. For carers only... If your experience of being supported and cared for as a carer was anything less than excellent, please tell us what would be needed to make your score a '10'.

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* 13. Thinking about all aspects of end of life care, from diagnosis onwards, please describe what you think is the most important thing the NHS must get right?

End of Life Care

Your experience

Question Title

* 1. Thinking about how you (or your loved one) were supported or cared for whilst living in your own home - all services, including GPs, nurses, home visits, and so on - please give an overall rating of your experience. (1 is very poor, 10 is excellent)

Question Title

* 2. If your experience of care or support received whilst in your own home (again, thinking about the whole range of services) was anything less than excellent, please tell us what would be needed to make your score a '10'.

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* 3. Thinking about how you (or your loved one) were supported, or cared for whilst under the care of hospital staff, please give an overall rating of your experience. (1 is very poor, 10 is excellent)

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* 4. If your experience of support or care whilst under the care of hospital staff was anything less than excellent, please tell us what would be needed to make your score a '10'.

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* 5. Thinking about how you (or your loved one) were cared for by hospices (either staying there, or using other services provided by hospice staff), please give an overall rating of your experience. (1 is very poor, 10 is excellent)

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* 6. If your experience of hospice care (either staying there, or using other services provided by hospice staff) was anything less than excellent, please tell us what would be needed to make your score a '10'.

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* 7. Thinking about how you (or your loved one) were cared for in a nursing home or a care home, please give an overall rating of your experience. (1 is very poor, 10 is excellent)

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* 8. If your experience of care in a care home or nursing home was anything less than excellent, please tell us what would be needed to make your score a '10'.

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* 9. Thinking about the whole range of services supporting you (or your loved one) - how well did they communicate with each other and work together? Please give an overall rating of your experience. (1 is very poor, 10 is excellent)

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* 10. If your experience of services communicating with each other and working together was anything less than excellent, please tell us what would be needed to make your score a '10'.

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* 11. For carers only... Thinking about the support you received, including bereavement support if relevant, please give an overall rating of your experience. (1 is very poor, 10 is excellent)

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* 12. For carers only... If your experience of being supported and cared for as a carer was anything less than excellent, please tell us what would be needed to make your score a '10'.

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* 13. Thinking about all aspects of end of life care, from diagnosis onwards, please describe what you think is the most important thing the NHS must get right?

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* 14. Finally, is there is anything else you think the NHS should know about local end of life care?