COVID & MY CARE

At at time when COVID 19 is dominating the headlines,
our priority remains focused on supporting our community. We recognise that many of you have had changes to your care, and it is vitally important that your voice is still heard. We would be very grateful if you could spend a little time completing this survey. Thank you.

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* 1. Where is your primary neuroendocrine cancer

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* 2. Where do you live?

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* 3. Where is your specialist care team?

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* 4. Has the COVID 19 Pandemic affected you and your care?

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* 5. Have you had changes to your clinic appointments? Tick box that applies.

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* 6. Where there has been a delay or postponement made, how long did you, or are you having to wait?

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* 7. Have you had changes to your scan appointments? Tick box that applies.

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* 8. Where there has been a delay or postponement made, how long did you, or are you having to wait?

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* 9. If you postponed your scan, was that due to concern about possible exposure to COVID 19?

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* 10. Has your treatment plan been changed?

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* 11. How has your treatment plan changed?

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* 12. Given your answer to Q11 what treatment has changed? Tick all that apply

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* 13. If you were offered an alternative treatment, what was it, and did you understand why?

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* 14. If you postponed your treatment, was that due to concern about possible exposure to COVID 19?

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* 15. Have any other aspects of care been affected? Tick all that apply

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* 16. Have you had any health concerns or worries during this time? 

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* 17. If you answered yes, what were these?

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* 18. Who were you able to contact about these concerns or worries?

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* 19. If you were not able to contact someone about your concerns and worries, why?

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* 20. If you were able to make contact, was your concern/worry addressed? (0 is concern not addressed & 10 is when your concern was fully addressed).

0 10
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i We adjusted the number you entered based on the slider’s scale.

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* 21. Have you been given any self care advice since the Pandemic started? Tick all that apply

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* 22. Was the advice you were given consistent and relevant to you?

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* 23. If you have any further comments, or feel there are other aspects of your care that have been affected by COVID 19 please let us know here

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