Compassionate Communities Project

We are currently developing a Compassionate Communities project as part of our strategy. Its aim is to bring together local people and services, creating a network of kindness, to improve end of life care and bereavement support for our whole community.

We want to address gaps in support and enhance the help available for those who need it; whether they be patients, loved ones, carers or anyone seeking advice and support.

To make this possible we need to understand the views and experiences of people within our community. Please could you spare 5 minutes to answer a few questions?

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* 1. Are you, or anyone you know, in need of support or advice around palliative care?

Yes

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* 2. Would you, or anyone you know, be interested in supporting or contributing to any support groups or other initiatives?

Yes

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* 3. What would help carers/families in particular? Please tick all appropriate.

Support Group with people who have similar experiences

One to one peer support

Spiritual or religious support

Coffee Mornings / Social group activities

Advice centre / One stop shop

Online advice

Telephone access to a listening ear

Support at work

Something else – please add your suggestion below.

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* 4. If you were diagnosed with a life-limiting illness what information or support might you want, in addition to any medical and clinical support? Please tick all appropriate.

Benefits information

Respite support

Counselling

Peer support

Information on your condition

Advice centre / One stop shop

Someone to talk to

Spiritual or religious support

Something else – please add your suggestion below.

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* 5. If you have been through a bereavement, what helped? Please tick all appropriate.

Practical step by step guides on what to do after death

Spiritual or religious support

A listening ear

Counselling

Social activities

Engaging with others experiencing bereavement

Learning new skills

Workplace support

Talking about the person who died

Sharing memories of the person who died

Doing something in memory of the person who died.

Can you think of anything else that might have helped you? Please add your suggestion below.

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* 6. If you have been through a bereavement, did you experience any of these difficulties?

Professional jargon

Feeling like you couldn’t ask the questions that you really wanted to

Not knowing who to talk to

Feeling like you have to ‘get over it’

Feeling like people didn’t understand

Being told that people ‘know how you feel’

People not talking about the person who has died

Feeling isolated

Something else – please add your suggestion below.

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* 7. What local groups or organisations are you aware of that would help if you:

were diagnosed with a serious illness

had to care for someone with a significant illness

had been recently bereaved?

Please enter the details of any groups or organisations below.

Compassionate Communities Project

Question Title

* 1. Are you, or anyone you know, in need of support or advice around palliative care?

Question Title

* 2. Would you, or anyone you know, be interested in supporting or contributing to any support groups or other initiatives?

Question Title

* 3. What would help carers/families in particular? Please tick all appropriate.

Question Title

* 4. If you were diagnosed with a life-limiting illness what information or support might you want, in addition to any medical and clinical support? Please tick all appropriate.

Question Title

* 5. If you have been through a bereavement, what helped? Please tick all appropriate.

Question Title

* 6. If you have been through a bereavement, did you experience any of these difficulties?

Question Title

* 7. What local groups or organisations are you aware of that would help if you: were diagnosed with a serious illness had to care for someone with a significant illness had been recently bereaved? Please enter the details of any groups or organisations below.

Question Title

* 8. Please share any additional comments or details below.

* 7. What local groups or organisations are you aware of that would help if you:

were diagnosed with a serious illness

had to care for someone with a significant illness

had been recently bereaved?

Please enter the details of any groups or organisations below.