Your experiences 

It's vital that we, and others, understand what it’s been like for the UK's PH community during the COVID-19 pandemic. Pulmonary hypertension also affects those around the person with the diagnosis, and as a carer, partner, relative or friend, your voice is important too. 
You can remain anonymous whilst answering these questions if you wish. This survey should take around 5 minutes to complete. Thank you for your time. 
 
NB. When a question states 'the person you live with', this refers to the person you live with who has PH. 
 
**If you are the parent or guardian of a child with PH, please answer the questions in this survey instead.**

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* 1. How would you describe yourself? 

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* 2. Would you describe yourself as an 'unpaid carer' for the person you live with?

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* 3. Have you been classed as clinically extremely vulnerable yourself during the COVID-19 pandemic?

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* 4. Have you had to go out of the house to work during the pandemic? 

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* 5. If you answered yes to question 4, how much worry has having to go out of the house to work during the pandemic caused your household? 

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* 6. How have you felt about the restrictions on everyday life that have been imposed since the start of the pandemic? 
(Please pick the statement you relate to most)

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* 7. How do you think the person you live with has felt about the restrictions on everyday life that have been imposed since the start of the pandemic?

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* 8. How concerned have you been through the pandemic about the person you live with contracting COVID-19? 

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* 9. Do you feel the physical health of the person you live with has deteriorated since the start of the pandemic? (Please mark all that apply)

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* 10. Do you feel the mental health of the person you live with has deteriorated since the start of the pandemic? (Please mark all that apply)

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* 11. How do you feel about restrictions lifting and 'normal life' resuming? 
(Please choose the statement that best applies to you)

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* 12. Do you have any comments relating to any of the questions on this survey? 

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* 13. As part of this piece of research, we would like to conduct telephone interviews to obtain more detailed information. We would also like to conduct further research amongst carers / loved ones in the future - which may be by email, phone or surveys. Please indicate below if you would be happy to be contacted. 

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* 14. If you answered 'yes' to either of the questions above, please provide your contact details below.
(Please be assured that your responses to this survey and any follow-up questions will remain anonymous. The contact details you provide will be used only for the purpose of this research).

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