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Action for M.E. is following-up its major 2014 survey, 'M.E. Time to Deliver' by looking, five years on, at health, welfare, employment and education for children and adults with M.E. Our 2014 survey helped shape our priorities with the results being used in our policy work. 

We would be enormously grateful if you could take the time and energy to complete this survey. We will use the results of this survey to inform our future policy and campaigning work, and hope to share our findings in the Autumn. The results of this survey will also help inform our next five year strategy. 
IMPORTANT: This a very long survey, with around 50 questions, so please pace yourself and take your time. If you would like to ask a carer, friend or family member to help you complete it, please do so. If you are unable to finish it, or would only like to fill in certain sections, that’s absolutely fine – any information you can share with us is valuable.

There is a progress bar at the top of each page, showing how many pages you have got through. If you want to take a break at any point, Survey Monkey will remember where you are up to when you return. The deadline for completing the survey is Friday 2 August 2019. 

You can choose to remain anonymous, or share your contact details at the end if you are happy for us to possibly follow-up on the information you give us. The details you share with us will NOT be shared outside Action for M.E. in a way that means you can be identified, unless you give us your permission at the end of the survey to be part of a case study. All information will be stored in line with our privacy policy which can be found on our website. 

If you would prefer to complete a paper copy of this survey, please email us at

Thank you for taking part.