Introduction

Last year over 8,000 of you filled in our State of Caring survey. We were so grateful for all your responses, which helped us to campaign successfully on a number of issues. We used carers’ collective voice and evidence to secure new rights for carers in the Health and Social Care Act 2022 in England, to campaign for cost of living increases in England, Wales, Scotland and Northern Ireland, to provide evidence of the need for a right to Carer’s Leave and other support within the workplace, and to campaign for breaks and funding for social care - and there’s still much more to do! 

In this survey we’ll be asking you to tell us what life is like now, and what needs to change. Your responses will enable us to be more focused in our work and to communicate to decision makers what really matters to you. 

This is the most extensive survey into carers' experiences in the UK. As a result, it may take 20-30 minutes to complete - so grab a cuppa and get comfy!

We realise that carers are busy. You can skip most questions in the survey. If you don't have much time, then answering the questions with the tick boxes is very much appreciated. However, the more information you give to us, the better we can build a comprehensive picture of how caring affects different people. We are really keen to hear about your experiences – good or bad – in as much detail as possible as this helps us understand what it is like to be a carer in 2022. So, if you do have more time, please use the comment boxes.

Any comments you provide will not be identified as yours unless you give us permission to contact you and we get agreement from you to do so. This survey is confidential and your personal details will never be passed onto a third party. We will publish the anonymised results of this survey. For more information, please see our privacy notice here.

Please note that this survey is only for unpaid carers (or former unpaid carers) who are looking after a disabled, older or seriously ill relative or friend.

We are so grateful to each and every person who takes the time to complete the survey and give us a full picture of their caring experience. We will publish the main results in our State of Caring report in the autumn.

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