National Eye Research Centre | Supporter Survey 2020

Your views are important to us.

By giving just 10 minutes of your time to complete this survey you are making a crucial difference to the way we communicate with you, our invaluable supporters, and the wider community. With your help, we will reach more people and fund more life-changing research into eye disease. Because of you, we will beat sight loss faster. Thank you.

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* 1. What is your age?

17 or younger

18-20

21-29

30-39

40-49

50-59

60 or older

I prefer not to say

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* 2. What is your gender?

Female

Male

Other (specify)

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* 3. Where do you live?

East of England

East Midlands

London

North East of England

North West of England

Northern Ireland

Scotland

South East of England

South West of England

Wales

West Midlands

Yorkshire and the Humber

Overseas

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* 4. How long have you been involved with the National Eye Research Centre?

More than 10 years.

5-10 years.

1-5 years.

Less than a year.

I’ve only just heard about you.

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* 5. Which of the following best describes your involvement with the National Eye Research Centre?
[please select all that apply]

I make occasional gifts when I receive an appeal.

I give regularly by Direct Debit / standing order / payroll giving.

I have included the National Eye Research Centre in my Will.

I have supported the National Eye Research Centre through challenge events.

I have attended fundraising events.

I receive communications.

I am a volunteer.

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* 6. How are you affected by eye disease?
[please select all that apply]

I am not affected (go to question 8).

I am personally affected.

Someone I care about is affected.

I am a healthcare professional working in the sector.

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* 7. If you or a loved one have experience of eye disease, please tell us the name of the condition and the impact it has on your/that person’s life:

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* 8. Why do you support the National Eye Research Centre?
[please select one that applies the most]

To improve our understanding of eye diseases.

To establish the careers of young eye researchers.

To find a cure for sight loss.

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* 9. How did you first become aware of the National Eye Research Centre?
[please select all that apply]

Through my local eye hospital.

Through my doctor/consultant.

Online search.

A friend/family member told me about you.

Through a social media post.

Through a fundraising event.

I was approached in the street.

I received information in the post.

Other (please specify)

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* 10. What was the main reason for your first contact with the National Eye Research Centre?
[please select all that apply]

To find information about my own eye condition.

To find information about a loved one’s eye condition.

To seek advice on how to manage my/a loved one’s eye condition.

To find information about research into my/a loved one’s eye condition.

To find out if I can join a clinical trial.

To make a donation.

To attend a fundraising event.

To find out how I can leave a gift in my Will to the National Eye Research Centre.

To find information about fundraising for the National Eye Research Centre.

Other (please specify)

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* 11. Based on your understanding, please select all the activities you believe the National Eye Research Centre is involved in.

Raising awareness of eye conditions.

Funding medical research into eye conditions.

Providing information and resources for people living with eye conditions.

Providing direct support to people living with vision impairment.

Lobbying government about the need for further investment into eye research.

Other (please specify)

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* 12. Considering each of the charities listed below, what do you currently believe each charity does?
[please select all that apply]

	Raises awareness of the cause	Provides information and resources	Provides help and care services	Funds medical research	Lobbies government
Cancer Research UK	Cancer Research UK Raises awareness of the cause	Cancer Research UK Provides information and resources	Cancer Research UK Provides help and care services	Cancer Research UK Funds medical research	Cancer Research UK Lobbies government
Macmillan Cancer Support	Macmillan Cancer Support Raises awareness of the cause	Macmillan Cancer Support Provides information and resources	Macmillan Cancer Support Provides help and care services	Macmillan Cancer Support Funds medical research	Macmillan Cancer Support Lobbies government
Blind Veterans UK	Blind Veterans UK Raises awareness of the cause	Blind Veterans UK Provides information and resources	Blind Veterans UK Provides help and care services	Blind Veterans UK Funds medical research	Blind Veterans UK Lobbies government
British Heart Foundation	British Heart Foundation Raises awareness of the cause	British Heart Foundation Provides information and resources	British Heart Foundation Provides help and care services	British Heart Foundation Funds medical research	British Heart Foundation Lobbies government
Shelter	Shelter Raises awareness of the cause	Shelter Provides information and resources	Shelter Provides help and care services	Shelter Funds medical research	Shelter Lobbies government
Samaritans	Samaritans Raises awareness of the cause	Samaritans Provides information and resources	Samaritans Provides help and care services	Samaritans Funds medical research	Samaritans Lobbies government
NSPCC	NSPCC Raises awareness of the cause	NSPCC Provides information and resources	NSPCC Provides help and care services	NSPCC Funds medical research	NSPCC Lobbies government
Guide Dogs for the Blind Association	Guide Dogs for the Blind Association Raises awareness of the cause	Guide Dogs for the Blind Association Provides information and resources	Guide Dogs for the Blind Association Provides help and care services	Guide Dogs for the Blind Association Funds medical research	Guide Dogs for the Blind Association Lobbies government
Royal National Institute of Blind People (RNIB)	Royal National Institute of Blind People (RNIB) Raises awareness of the cause	Royal National Institute of Blind People (RNIB) Provides information and resources	Royal National Institute of Blind People (RNIB) Provides help and care services	Royal National Institute of Blind People (RNIB) Funds medical research	Royal National Institute of Blind People (RNIB) Lobbies government
Fight for Sight	Fight for Sight Raises awareness of the cause	Fight for Sight Provides information and resources	Fight for Sight Provides help and care services	Fight for Sight Funds medical research	Fight for Sight Lobbies government
Macular Society	Macular Society Raises awareness of the cause	Macular Society Provides information and resources	Macular Society Provides help and care services	Macular Society Funds medical research	Macular Society Lobbies government

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* 13. Thinking about other organisations concerned with sight loss and eye disease, how well do you know the following charities?

	I know them and have supported in the past	I know them and I’m a current supporter	Have heard of them but don’t currently support them	Have heard of them but don’t know much about what they do	I have never heard of them
Guide Dogs for the Blind Association	Guide Dogs for the Blind Association I know them and have supported in the past	Guide Dogs for the Blind Association I know them and I’m a current supporter	Guide Dogs for the Blind Association Have heard of them but don’t currently support them	Guide Dogs for the Blind Association Have heard of them but don’t know much about what they do	Guide Dogs for the Blind Association I have never heard of them
Royal National Institute of Blind People (RNIB)	Royal National Institute of Blind People (RNIB) I know them and have supported in the past	Royal National Institute of Blind People (RNIB) I know them and I’m a current supporter	Royal National Institute of Blind People (RNIB) Have heard of them but don’t currently support them	Royal National Institute of Blind People (RNIB) Have heard of them but don’t know much about what they do	Royal National Institute of Blind People (RNIB) I have never heard of them
Blind Veterans UK	Blind Veterans UK I know them and have supported in the past	Blind Veterans UK I know them and I’m a current supporter	Blind Veterans UK Have heard of them but don’t currently support them	Blind Veterans UK Have heard of them but don’t know much about what they do	Blind Veterans UK I have never heard of them
Sightsavers International	Sightsavers International I know them and have supported in the past	Sightsavers International I know them and I’m a current supporter	Sightsavers International Have heard of them but don’t currently support them	Sightsavers International Have heard of them but don’t know much about what they do	Sightsavers International I have never heard of them
Retina UK	Retina UK I know them and have supported in the past	Retina UK I know them and I’m a current supporter	Retina UK Have heard of them but don’t currently support them	Retina UK Have heard of them but don’t know much about what they do	Retina UK I have never heard of them
Moorfields Eye Charity	Moorfields Eye Charity I know them and have supported in the past	Moorfields Eye Charity I know them and I’m a current supporter	Moorfields Eye Charity Have heard of them but don’t currently support them	Moorfields Eye Charity Have heard of them but don’t know much about what they do	Moorfields Eye Charity I have never heard of them
Fight for Sight	Fight for Sight I know them and have supported in the past	Fight for Sight I know them and I’m a current supporter	Fight for Sight Have heard of them but don’t currently support them	Fight for Sight Have heard of them but don’t know much about what they do	Fight for Sight I have never heard of them
Glaucoma UK	Glaucoma UK I know them and have supported in the past	Glaucoma UK I know them and I’m a current supporter	Glaucoma UK Have heard of them but don’t currently support them	Glaucoma UK Have heard of them but don’t know much about what they do	Glaucoma UK I have never heard of them
Macular Society	Macular Society I know them and have supported in the past	Macular Society I know them and I’m a current supporter	Macular Society Have heard of them but don’t currently support them	Macular Society Have heard of them but don’t know much about what they do	Macular Society I have never heard of them

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* 14. How much do you know about the eye conditions listed below?

	I know a lot about it and live with this condition myself	I know a lot about it and know someone who lives with it	I know a lot about it	I know a moderate amount	I’ve heard of it but don’t know what it is	I am unaware of this condition
Age-related macular degeneration	Age-related macular degeneration I know a lot about it and live with this condition myself	Age-related macular degeneration I know a lot about it and know someone who lives with it	Age-related macular degeneration I know a lot about it	Age-related macular degeneration I know a moderate amount	Age-related macular degeneration I’ve heard of it but don’t know what it is	Age-related macular degeneration I am unaware of this condition
Amblyopia	Amblyopia I know a lot about it and live with this condition myself	Amblyopia I know a lot about it and know someone who lives with it	Amblyopia I know a lot about it	Amblyopia I know a moderate amount	Amblyopia I’ve heard of it but don’t know what it is	Amblyopia I am unaware of this condition
Cataracts	Cataracts I know a lot about it and live with this condition myself	Cataracts I know a lot about it and know someone who lives with it	Cataracts I know a lot about it	Cataracts I know a moderate amount	Cataracts I’ve heard of it but don’t know what it is	Cataracts I am unaware of this condition
Charles Bonnet Syndrome	Charles Bonnet Syndrome I know a lot about it and live with this condition myself	Charles Bonnet Syndrome I know a lot about it and know someone who lives with it	Charles Bonnet Syndrome I know a lot about it	Charles Bonnet Syndrome I know a moderate amount	Charles Bonnet Syndrome I’ve heard of it but don’t know what it is	Charles Bonnet Syndrome I am unaware of this condition
Corneal Dystrophy	Corneal Dystrophy I know a lot about it and live with this condition myself	Corneal Dystrophy I know a lot about it and know someone who lives with it	Corneal Dystrophy I know a lot about it	Corneal Dystrophy I know a moderate amount	Corneal Dystrophy I’ve heard of it but don’t know what it is	Corneal Dystrophy I am unaware of this condition
Diabetic Retinopathy	Diabetic Retinopathy I know a lot about it and live with this condition myself	Diabetic Retinopathy I know a lot about it and know someone who lives with it	Diabetic Retinopathy I know a lot about it	Diabetic Retinopathy I know a moderate amount	Diabetic Retinopathy I’ve heard of it but don’t know what it is	Diabetic Retinopathy I am unaware of this condition
Glaucoma	Glaucoma I know a lot about it and live with this condition myself	Glaucoma I know a lot about it and know someone who lives with it	Glaucoma I know a lot about it	Glaucoma I know a moderate amount	Glaucoma I’ve heard of it but don’t know what it is	Glaucoma I am unaware of this condition
Keratoconus	Keratoconus I know a lot about it and live with this condition myself	Keratoconus I know a lot about it and know someone who lives with it	Keratoconus I know a lot about it	Keratoconus I know a moderate amount	Keratoconus I’ve heard of it but don’t know what it is	Keratoconus I am unaware of this condition
Leber's Hereditary Optic Neuropathy	Leber's Hereditary Optic Neuropathy I know a lot about it and live with this condition myself	Leber's Hereditary Optic Neuropathy I know a lot about it and know someone who lives with it	Leber's Hereditary Optic Neuropathy I know a lot about it	Leber's Hereditary Optic Neuropathy I know a moderate amount	Leber's Hereditary Optic Neuropathy I’ve heard of it but don’t know what it is	Leber's Hereditary Optic Neuropathy I am unaware of this condition
Retinitis Pigmentosa	Retinitis Pigmentosa I know a lot about it and live with this condition myself	Retinitis Pigmentosa I know a lot about it and know someone who lives with it	Retinitis Pigmentosa I know a lot about it	Retinitis Pigmentosa I know a moderate amount	Retinitis Pigmentosa I’ve heard of it but don’t know what it is	Retinitis Pigmentosa I am unaware of this condition
Nystagmus	Nystagmus I know a lot about it and live with this condition myself	Nystagmus I know a lot about it and know someone who lives with it	Nystagmus I know a lot about it	Nystagmus I know a moderate amount	Nystagmus I’ve heard of it but don’t know what it is	Nystagmus I am unaware of this condition
Ocular Melanoma (Eye Cancer)	Ocular Melanoma (Eye Cancer) I know a lot about it and live with this condition myself	Ocular Melanoma (Eye Cancer) I know a lot about it and know someone who lives with it	Ocular Melanoma (Eye Cancer) I know a lot about it	Ocular Melanoma (Eye Cancer) I know a moderate amount	Ocular Melanoma (Eye Cancer) I’ve heard of it but don’t know what it is	Ocular Melanoma (Eye Cancer) I am unaware of this condition
Photophobia (Light Sensitivity)	Photophobia (Light Sensitivity) I know a lot about it and live with this condition myself	Photophobia (Light Sensitivity) I know a lot about it and know someone who lives with it	Photophobia (Light Sensitivity) I know a lot about it	Photophobia (Light Sensitivity) I know a moderate amount	Photophobia (Light Sensitivity) I’ve heard of it but don’t know what it is	Photophobia (Light Sensitivity) I am unaware of this condition
Stargardt Disease	Stargardt Disease I know a lot about it and live with this condition myself	Stargardt Disease I know a lot about it and know someone who lives with it	Stargardt Disease I know a lot about it	Stargardt Disease I know a moderate amount	Stargardt Disease I’ve heard of it but don’t know what it is	Stargardt Disease I am unaware of this condition
Uveitis	Uveitis I know a lot about it and live with this condition myself	Uveitis I know a lot about it and know someone who lives with it	Uveitis I know a lot about it	Uveitis I know a moderate amount	Uveitis I’ve heard of it but don’t know what it is	Uveitis I am unaware of this condition

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* 15. Did you know that losing one’s sight is the number one fear of the majority of the UK population, second only to receiving a cancer diagnosis?

Yes

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* 16. Who do you think are the main funders of eye research in the UK?
[please select your top three choices]

The government

Sight loss services charities (e.g. RNIB, Guide Dogs, etc.)

Universities

Eye research charities (e.g., Moorfields Eye Charity, Macular Society, Fight for Sight, Retina UK, National Eye Research Centre, Glaucoma UK)

Hospitals

Pharmaceutical companies

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* 17. What do you believe is currently the main cause of sight loss in the UK?

Most people living with sight loss have done so since birth.

Most sight loss is the result of an eye condition.

Most sight loss is the result of getting older.

Most sight loss is caused by accidents and injuries.

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* 18. Thinking specifically about eye conditions, which of the following statements do you agree with most?

Most eye conditions lead to sight loss and blindness.

Most eye conditions can be treated if they are caught in the early stages.

Most eye conditions do not lead to sight loss and blindness.

More research is needed to find cures for eye conditions.

I don’t believe medical research will find ways to prevent or cure eye conditions.

I don’t know much about eye conditions and the causes of sight loss.

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* 19. How would you currently describe the National Eye Research Centre to other people?
[please write a short sentence]

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* 20. What matters to you the most in supporting the National Eye Research Centre?
[please select your top two choices]

That we have a clear focus on finding a cure.

That we invest your money in the most promising research.

That we respect your money and spend it prudently.

That we keep you involved in our decision making.

That we are transparent and accountable.

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* 21. As part of our strategic review we are considering changing our name. We are not a research centre that directly employs researchers, instead we fund eye research scientists in UK universities. We are fully funded by public donations and do not receive any government funding. Which of the following options do you feel would best describe who we are and what we do?
[please rank your top 3 preferences]

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* 22. Please suggest any other alternative names you think we should consider:

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* 23. If you have any further comments, please feel free to add them here.

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* 24. Your feedback is extremely important to us. With your help we can continue to reach more people and push closer to our goal of making sight loss a thing of the past. Would you be willing to receive the results of this survey and occasionally hear from us about breaking news from the eye research world? If so, please provide your email address. We won’t bombard you and you can unsubscribe at any time.

No, thank you

Yes I’d like to hear – Please provide your email address now, you can change your mind at any time.

email address

National Eye Research Centre | Supporter Survey 2020

Your views are important to us.

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* 1. What is your age?

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* 2. What is your gender?

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* 3. Where do you live?

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* 4. How long have you been involved with the National Eye Research Centre?

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* 5. Which of the following best describes your involvement with the National Eye Research Centre? [please select all that apply]

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* 6. How are you affected by eye disease? [please select all that apply]

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* 7. If you or a loved one have experience of eye disease, please tell us the name of the condition and the impact it has on your/that person’s life:

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* 8. Why do you support the National Eye Research Centre? [please select one that applies the most]

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* 9. How did you first become aware of the National Eye Research Centre?[please select all that apply]

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* 10. What was the main reason for your first contact with the National Eye Research Centre?[please select all that apply]

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* 11. Based on your understanding, please select all the activities you believe the National Eye Research Centre is involved in.

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* 12. Considering each of the charities listed below, what do you currently believe each charity does? [please select all that apply]

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* 13. Thinking about other organisations concerned with sight loss and eye disease, how well do you know the following charities?

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* 14. How much do you know about the eye conditions listed below?

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* 15. Did you know that losing one’s sight is the number one fear of the majority of the UK population, second only to receiving a cancer diagnosis?

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* 16. Who do you think are the main funders of eye research in the UK?[please select your top three choices]

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* 17. What do you believe is currently the main cause of sight loss in the UK?

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* 18. Thinking specifically about eye conditions, which of the following statements do you agree with most?

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* 19. How would you currently describe the National Eye Research Centre to other people? [please write a short sentence]

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* 20. What matters to you the most in supporting the National Eye Research Centre?[please select your top two choices]

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* 22. Please suggest any other alternative names you think we should consider:

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* 23. If you have any further comments, please feel free to add them here.

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* 5. Which of the following best describes your involvement with the National Eye Research Centre?
[please select all that apply]

* 6. How are you affected by eye disease?
[please select all that apply]

* 8. Why do you support the National Eye Research Centre?
[please select one that applies the most]

* 9. How did you first become aware of the National Eye Research Centre?
[please select all that apply]

* 10. What was the main reason for your first contact with the National Eye Research Centre?
[please select all that apply]

* 12. Considering each of the charities listed below, what do you currently believe each charity does?
[please select all that apply]

* 16. Who do you think are the main funders of eye research in the UK?
[please select your top three choices]

* 19. How would you currently describe the National Eye Research Centre to other people?
[please write a short sentence]

* 20. What matters to you the most in supporting the National Eye Research Centre?
[please select your top two choices]