Why are we doing this study?
We are asking parents of children aged between 4yrs – 18yrs who attend ELCH to take part in this study in order to see what impact a health condition has on their child’s school life. We hope to increase understanding of the challenges these children face as well as highlight examples of the support they have received in education. We also hope this study will raise the profile of the Evelina Hospital School and explore ways for it to positively develop its role to aid ELCH patients achieve their potential at school.
What does taking part involve?
As part of the study you will be asked to complete a short survey about your child’s experiences of school. The survey will take approximately 10-15 minutes to complete. You are under no obligation to take part and you may skip any questions that you do not wish to answer and stop the survey at any time. Only one parent needs to complete the survey for each child.
What are the risks and benefits of taking part?
We hope to raise awareness of the experiences of school for children with medical conditions and learn from examples where they have been supported and also where things could be improved. There are no direct benefits to you and your child for taking part in this research and unfortunately we are unable to directly resolve any current problems your child may be facing at school in relation to their health. However through the dissemination of the results of this study we hope to improve the experience of school for children with medical conditions.
You have the right to remain anonymous but if you would like to take part in this study and feel distressed at any time, please feel free to contact the research team on 0207 188 4640 or sarah.evans@gstt.nhs.uk so we can signpost you onto appropriate support services. If you do get in touch there will be no link between you and your survey data.