IKCC: My Treatment My ChoiceDecision Aid Survey

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* 2. Are you: (please tick all relevant boxes)

A patient with kidney cancer

A carer/family/friend of someone with kidney cancer

A healthcare professional

A patient organisation leader

Other (please specify)

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* 3. What is the highest level of school you have completed or the highest degree you have received? (please tick one answer)

Less than high school diploma

High school degree or equivalent

Some college but no degree

Associate's Degree (e.g. AA or AS)

Bachelor's Degree (e.g. BA or BS)

Master's Degree (e.g. MA or MS)

Professional Degree (MD or JD)

Doctoral Degree (PhD or EdD)

Other (please specify)

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* 4. Overall, how understandable did you find this decision aid? (please tick one answer)

It was not understandable at all

It was not very understandable

It was somewhat understandable

It was very understandable

If not understandable, why? (please help us understand why)

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* 5. After reading the decision aid, I understood more about: (for each statement, please tick the box you agree with most)

	Strongly disagree	Disagree	Agree	Strongly agree
What is important to me in my life – my values and priorities	What is important to me in my life – my values and priorities Strongly disagree	What is important to me in my life – my values and priorities Disagree	What is important to me in my life – my values and priorities Agree	What is important to me in my life – my values and priorities Strongly agree
Advanced kidney cancer and its treatment	Advanced kidney cancer and its treatment Strongly disagree	Advanced kidney cancer and its treatment Disagree	Advanced kidney cancer and its treatment Agree	Advanced kidney cancer and its treatment Strongly agree
Benefits and disadvantages of the various treatment options for advanced kidney cancer	Benefits and disadvantages of the various treatment options for advanced kidney cancer Strongly disagree	Benefits and disadvantages of the various treatment options for advanced kidney cancer Disagree	Benefits and disadvantages of the various treatment options for advanced kidney cancer Agree	Benefits and disadvantages of the various treatment options for advanced kidney cancer Strongly agree
The type of questions to ask my healthcare professional	The type of questions to ask my healthcare professional Strongly disagree	The type of questions to ask my healthcare professional Disagree	The type of questions to ask my healthcare professional Agree	The type of questions to ask my healthcare professional Strongly agree
Where I can get more information about advanced kidney cancer	Where I can get more information about advanced kidney cancer Strongly disagree	Where I can get more information about advanced kidney cancer Disagree	Where I can get more information about advanced kidney cancer Agree	Where I can get more information about advanced kidney cancer Strongly agree
Where I can get support	Where I can get support Strongly disagree	Where I can get support Disagree	Where I can get support Agree	Where I can get support Strongly agree

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* 6. I feel this decision aid could help with: (for each statement, please tick the box you agree with most)

	Strongly disagree	Disagree	Agree	Strongly agree
Discussions with healthcare professionals about treatment	Discussions with healthcare professionals about treatment Strongly disagree	Discussions with healthcare professionals about treatment Disagree	Discussions with healthcare professionals about treatment Agree	Discussions with healthcare professionals about treatment Strongly agree
If you disagree, why? (please specify)
Discussions with family/friends about treatment	Discussions with family/friends about treatment Strongly disagree	Discussions with family/friends about treatment Disagree	Discussions with family/friends about treatment Agree	Discussions with family/friends about treatment Strongly agree
If you disagree, why? (please specify)
Newly diagnosed patients	Newly diagnosed patients Strongly disagree	Newly diagnosed patients Disagree	Newly diagnosed patients Agree	Newly diagnosed patients Strongly agree
If you disagree, why? (please specify)
Patients who are currently being treated for advanced kidney cancer	Patients who are currently being treated for advanced kidney cancer Strongly disagree	Patients who are currently being treated for advanced kidney cancer Disagree	Patients who are currently being treated for advanced kidney cancer Agree	Patients who are currently being treated for advanced kidney cancer Strongly agree
If you disagree, why? (please specify)

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* 7. Overall, how useful do you think the decision aid would be in helping a patient make a decision about treatment that is right for them? (please tick the box you agree with most)

Not very helpful at all

Not very helpful

Somewhat helpful

Very helpful

If not helpful, why (please specify)

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* 8. In what form would you most like to use the decision aid?

Paper/printed booklet

Online booklet

Interactive online booklet

Mobile App

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* 9. Would you be willing to share this Decision Aid with patients in your country for additional feedback? If yes, please provide your email address below.

IKCC: My Treatment My Choice
Decision Aid Survey

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* 1. In what country do you live?

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* 2. Are you: (please tick all relevant boxes)

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* 3. What is the highest level of school you have completed or the highest degree you have received? (please tick one answer)

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* 4. Overall, how understandable did you find this decision aid? (please tick one answer)

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* 5. After reading the decision aid, I understood more about: (for each statement, please tick the box you agree with most)

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* 6. I feel this decision aid could help with: (for each statement, please tick the box you agree with most)

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* 7. Overall, how useful do you think the decision aid would be in helping a patient make a decision about treatment that is right for them? (please tick the box you agree with most)

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* 8. In what form would you most like to use the decision aid?

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* 9. Would you be willing to share this Decision Aid with patients in your country for additional feedback? If yes, please provide your email address below.

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* 10. Please add any further comments below or email IKCC direct at: julia@ikcc.org