1. We welcome your views on our Understanding My Needs form

Understanding My Needs is designed to help people with MND record their individual needs and preferences. The completed form helps guide care workers in the person's home, or staff during admissions to a hospital or hospice. The aim is to improve support for the person with MND if their speech and communication have been affected.

The MND Association welcomes your feedback to help improve our information for people with or affected by MND, or Kennedy’s disease. Complete the short questionnaire below and respond to all the questions if you can. Please ensure these views are your own and thank you for your valuable assistance.

Please be aware that your comments may be used as anonymous quotes to support our work, or raise awareness through campaigning or fundraising bids. This can really help to improve understanding and make a difference for all those affected by the condition.

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* 1. Which of the following options best describes you?

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* 2. Which of the following do you feel the revised information will help to provide for people living with or affected by MND? (Select all that apply.)

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* 3. How useful did you find the following elements in the Understanding My Needs form?

  essential very useful quite useful of no use
All contact details, for the person with MND, their team and the MND Association
Acknowledgement of other advance care documents to raise awareness of wishes for future care
Information about needs, such as communication and breathing
Information about the person's life and interests to provide deeper understanding
Space for photos if wished

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* 4. Was the text easy to read?

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* 5. Was it easy to find different items in the sheet?

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* 6. Can you describe how this resource has helped you? (For example, in accessing support or raising awareness of needs.)

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* 7. Do you have any other comments you would like to make?

Thank you for your assistance.

If you would like further guidance and support, please contact our MND Connect Helpline:
Telephone: 0808 802 6262
Email: mndconnect@mndassociation.org

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