Perinatal Post Mortem Consent Survey

Dear Colleagues,

The Perinatal Post Mortem Consent Working Group (on behalf of the SSBC Newborn Network) are aiming to develop a training package that will be available to health professionals who obtain consent for Perinatal Post Mortems.

In order to help us design a useful educational resource, we have designed this survey which aims to collect information on existing practices relating to Perinatal Post Mortem Consent. It is targeted at health professionals who are or will be involved in obtaining consent for perinatal post mortems during their careers. If you feel this is applicable to you, we would be very grateful if you could complete our survey.

It consists of 17 short questions that will take a maximum of 15 minutes to complete.

The survey will be open until 30th September 2018.

If you have any questions, please do not hesitate to contact me on h.wood5@nhs.net. Thank you in advance for your help.

Yours faithfully,

Dr Hannah Wood
Neonatal Grid Trainee on behalf of The Perinatal Post Mortem Consent Working Group

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* 1. Please select your role.

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* 2. For Obstetric/Midwifery/Bereavement colleagues, please specify which region you work within.

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* 3. For Paediatric/Neonatal colleagues, please select the Neonatal Operational Delivery Network you work within.

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* 4. A perinatal post mortem is likely to give important information. In what proportion of stillbirths/neonatal deaths, does a post-mortem change the diagnosis:

<10%

10-30%

>30%

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* 5. Should all parents who have suffered a stillbirth/neonatal death be offered a post mortem?

Yes

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* 6. How often do you take consent for perinatal post mortem?

Regularly

Occasionally

Never

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* 7. Have you had training in obtaining consent for perinatal post mortem?

Yes

If yes, what did this training consist of?

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* 8. Have you observed a colleague obtain consent for perinatal post mortem?

Yes

If yes, who have you observed (Role and Designation)?

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* 9. Have you observed a perinatal post mortem?

Yes

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* 10. Please list the information you would discuss when obtaining consent for perinatal post mortem? For example, how a post mortem is performed.

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* 11. What other options do you offer parents if they do not wish to have a complete post mortem?

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* 12. Do you offer written information about perinatal post mortem to parents?

Yes

If yes, what written information do you offer?

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* 13. Have you been observed obtaining consent for perinatal post mortem?

Yes

If yes, who observed you (Role and Designation)?

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* 14. Have you had any feedback after discussing perinatal post mortem with parents?

Yes

If yes, who was the feedback from (role and designation)?

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* 15. Are you aware of any information resources that may help you prepare for obtaining consent for perinatal post mortem?

Yes

If yes, please specify.

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* 16. How confident do you feel obtaining consent for perinatal post mortem?

Extremely confident

Very confident

Somewhat confident

Not so confident

Not at all confident

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* 17. Do you feel more extensive and accessible training for taking consent for perinatal post mortem is needed?

Yes

If yes, what would you like to see included in this training?