Practical Top Tips for home enteral tube users NEW PINNT resource |
Coming soon with your help!
What is the aim of the project? The aim of this project is to create a guide that can be used by both new and existing enteral tube users to troubleshoot problems and as a source of ideas and tips around living well with a tube. There is much more to managing a tube than you are told by health professionals when your tube is first fitted and by producing a guide we aim to share the knowledge we have collectively built up on this. We also hope this will be a useful resource for discussions with your health professionals, ensuring you have the right information to hand before contacting them so you can help them to help you.
How you can help? We know that the best knowledge on managing an enteral tube only comes from really living with a one. That’s why we need your input and tips because you are the experts! So, if you have your own unique method for unblocking a tube, or a clever way of setting up your equipment, or ideas relating to any aspect of enteral feeding that’s what we’d like to hear. You are welcome to include photos if they help demonstrate your ideas. (There is a section at the end of the survey to do this). Please be as specific as possible. Try to imagine yourself as a new tube user, and think about what you would want to know - it is often the small details that are most useful.
What do we not want? The guide will relate only to non-clinical aspects of managing tubes and should not replace advice given by medical professionals. Therefore, we can’t use comments that are medical in nature or giving guidance on treating specific diagnoses or conditions. Any pictures submitted should not be overly gory and should not be used to promote brands.
How will we use your feedback? Your comments will be collected and collated into a guide of ‘Practical Top Tips for enteral tube users’ that will be shared via the PINNT website and social media. As the comments will be collated, they will be anonymous and may not be in their original format. Going forward with this project, we are planning to involve health professionals, for example dietitians or nutrition nurses, who can respond to common problems and issues that have been raised as a result of your comments. With their input, we hope to be able to identify best tips or clinical responses to these common problems and publish these in future guides, creating a two way dialogue between us as tube users and the health professionals in addressing these issues.
Thank you for your interest in helping with this project.
How you can help? We know that the best knowledge on managing an enteral tube only comes from really living with a one. That’s why we need your input and tips because you are the experts! So, if you have your own unique method for unblocking a tube, or a clever way of setting up your equipment, or ideas relating to any aspect of enteral feeding that’s what we’d like to hear. You are welcome to include photos if they help demonstrate your ideas. (There is a section at the end of the survey to do this). Please be as specific as possible. Try to imagine yourself as a new tube user, and think about what you would want to know - it is often the small details that are most useful.
What do we not want? The guide will relate only to non-clinical aspects of managing tubes and should not replace advice given by medical professionals. Therefore, we can’t use comments that are medical in nature or giving guidance on treating specific diagnoses or conditions. Any pictures submitted should not be overly gory and should not be used to promote brands.
How will we use your feedback? Your comments will be collected and collated into a guide of ‘Practical Top Tips for enteral tube users’ that will be shared via the PINNT website and social media. As the comments will be collated, they will be anonymous and may not be in their original format. Going forward with this project, we are planning to involve health professionals, for example dietitians or nutrition nurses, who can respond to common problems and issues that have been raised as a result of your comments. With their input, we hope to be able to identify best tips or clinical responses to these common problems and publish these in future guides, creating a two way dialogue between us as tube users and the health professionals in addressing these issues.
Thank you for your interest in helping with this project.