Coming soon with your help!

What is the aim of the project? The aim of this project is to create a guide that can be used by both new and existing enteral tube users to troubleshoot problems and as a source of ideas and tips around living well with a tube. There is much more to managing a tube than you are told by health professionals when your tube is first fitted and by producing a guide we aim to share the knowledge we have collectively built up on this. We also hope this will be a useful resource for discussions with your health professionals, ensuring you have the right information to hand before contacting them so you can help them to help you.

How you can help? 
We know that the best knowledge on managing an enteral tube only comes from really living with a one. That’s why we need your input and tips because you are the experts! So, if you have your own unique method for unblocking a tube, or a clever way of setting up your equipment, or ideas relating to any aspect of enteral feeding that’s what we’d like to hear. You are welcome to include photos if they help demonstrate your ideas. (There is a section at the end of the survey to do this)

What do we not want? 
The guide will relate only to non-clinical aspects of managing tubes and should not replace advice given by medical professionals. Therefore, we can’t use comments that are medical in nature or giving guidance on treating specific diagnoses or conditions. Any pictures submitted should not be overly gory and should not be used to promote brands.

How will we use your feedback? 
Your comments will be collected and collated into a guide of ‘Practical Top Tips for enteral tube users’ that will be shared via the PINNT website and social media. As the comments will be collated, they will be anonymous and may not be in their original format. Going forward with this project, we are planning to involve health professionals, for example dietitians or nutrition nurses, who can respond to common problems and issues that have been raised as a result of your comments. With their input, we hope to be able to identify best tips or clinical responses to these common problems and publish these in future guides, creating a two way dialogue between us as tube users and the health professionals in addressing these issues.

Thank you for your interest in helping with this project.
 

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* 1. Please select the option below that relates to you:

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* 2. Your name:

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* 3. Consent: Any tips submitted may be published in the ‘Practical Top Tips for home enteral tube users’ leaflet and shared via PINNTs' website and social media platforms. Comments may not be shared in their original format. By submitting photos, you are giving permission for these to be included in the leaflet and via these forums. Please confirm that you consent to this:

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* 4. If we need further details about the tips and information you provide, would you be happy to be contacted regarding this?

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* 5. What type of enteral tube(s) do you currently have?

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* 6. Your current tube(s) - if applicable is your tube(s) [Dangler: with an external length of tubing]:

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* 7. Before the tube you currently have, which of the following feeding tubes have you had?

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* 8. Approximately how long have you had a feeding tube - to the nearest year?

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* 9. Do you use your tube(s) for: 

(Please select all which apply)

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