Travellers Times Cancer Macmillan Survey

We know that ‘Cancer’ is a scary word. Some of us can talk about it, some call it ‘the bad disease’ or the ‘c’ word and some of us won’t talk about it at all and we understand why – but there is no doubt that with the right help and advice you and your family members can be better supported through it. That’s why we want to know what can be done to make it easier for you to find the right support for you.

To do this, Travellers Times want to hear from you about your experiences. Who you've talked to, who would you like to talk to and how. Please take time to fill in our survey – or if you’d prefer to do it over the phone please call 07970 404966. All responses will be kept completely confidential.

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* 1. What experience have you had of cancer?

None directly but I am aware of it.

Supported a family member or close friend through cancer treatment.

Experienced loss of a family member or close friend through cancer.

Have experienced cancer treatment and survived.

Experiencing cancer and / or treatment right now.

Other (please specify)

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* 2. Have you had any contact with any of the following cancer health support services?

NHS / GP / Hospital

Macmillan Cancer support

Marie Curie

Teenage Cancer Trust

Local support group

Other (please specify)

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* 3. If YES what was your experience of that support?

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* 4. If NO what are your reasons for not getting support?

I didn’t know who to talk to or where to go.

I didn’t want to because they don’t understand my heritage.

I didn’t want because I am scared of getting treatment.

My family member didn’t want me to because they are scared of treatment or going to hospital.

I thought I would have to tell them I am a Traveller and it worries me that I will get a bad service.

Everything is written down and I am embarrassed if I can’t read it.

I don’t like some of the words they use.

I believe once you get cancer there is nothing that can be done.

I would prefer to talk to someone from my own community.

Other (please specify)

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* 5. These are the things I would like more information about (please tick all that apply).

I don’t know how to start a conversation about cancer with my family and I would like some help to do that.

I need advice about money / financial help.

I need to know more about the signs of cancer.

I need to know about things that I can do to reduce the risk of cancer.

I need a really clear explanation of why somethings give you a bigger risk of getting cancer like sunbeds, smoking or diet.

How can get help and support if I am moving around the country).

I would like a clear explanation of what I can expect if I do contact a cancer support service like Macmillan (What will they ask me, will they share my information, can they force me or my family, to do something I don’t want to).

Other (please specify)

Travellers Times Cancer Macmillan Survey

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* 1. What experience have you had of cancer?

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* 2. Have you had any contact with any of the following cancer health support services?

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* 3. If YES what was your experience of that support?

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* 4. If NO what are your reasons for not getting support?

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* 5. These are the things I would like more information about (please tick all that apply).

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* 6. What is you preferred way to get information?

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* 7. Please tell us what sort words or terms you would like professionals to use when talking about cancer.

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* 8. Please tell us some of the words or terms professionals should avoid when talking to you about cancer.