A people-focused project.

Postural care is defined as ‘using the right equipment and positioning techniques to help protect and restore body shape’(1). Changes in body shape can lead to negative consequences potentially causing premature death for people with a Learning Disability(2)
 
A survey in May 2020(3) identified various ways Covid-19 has impacted on people with Learning Disabilities. Further exploration funded by NHS England, is being carried out by Simple Stuff Works (experts in postural care) and Born at the Right Time (experts in communication and co-production).

Thank you for taking the time to complete the survey below the results of which will be shared at an on-line event on 23rd November 2020. The survey is likely to take you about 15 minutes and must be submitted before 9th October 2020. By supplying your email address at the end, you will be entered into a £100 Amazon voucher prize draw.
 
1 Mencap (2010) Postural care: protecting and restoring body shape. https://www.mencap.org.uk/sites/default/files/2016-11/Postural%20Care%20booklet.pdf   Accessed September 2020
2 The Learning Disability Mortality Review (LeDeR) Programme (2019). Annual Report, 2018. University of Bristol. http://www.bristol.ac.uk/sps/leder/resources/annual-reports/ Accessed September 2020
3 National executive committee of Association of Chartered Physiotherapists for Adults with Learning Disabilities (2020) 

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* 1. Completion of this survey is on an entirely voluntary basis. The purpose of the project is to better understand how postural care is provided in order to support change. There are no anticipated risks to answering questions and it is hoped that the results of the survey will shape a project to support improving postural care provision for people with Learning Disabilities.

Identifiable data will be seen by the researchers only. All data will be stored securely in accordance with the General Data Protection Regulation (GDPR) and Data Protection Act 2018 and anonymised before reporting. 
 

I give informed consent for the anonymised data I provide to be used for this project

Demographics

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* 2. Where in the UK do you work?

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* 3. What ages are the people you commission services for?

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* 4. What is the service/context in which you work and what is your role?
For example Education, Health, Social Care, NHS, Acute, Community etc

Changes to provision

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* 5. Please list the postural care services you commission that have been affected by Covid-19.
This might be wheelchair services, hospital discharge and rehabilitation, operations, Botox, orthotics, night-time positioning or alternative seating provision for children or adults.

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* 6. How have these services changed since Covid-19?
This might include the ability to see a people face to face, remote working, referrals, urgent, non-urgent, assessments, equipment handover, reviews, capacity, training and advocacy.

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* 7. Has your perspective and experience of the relationships between commissioners, therapists, families and individuals changed since Covid-19? And if so how?

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* 8. What best practice have you been part of or seen during this time?

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* 9. Describe any silver linings you have experienced (if there are any)

Impact on people.

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* 10. How have the changes to working practice and provision, as a result of Covid-19, impacted you and your team?

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* 11. How have the changes to working practice and provision, as a result of Covid-19, impacted people with learning disabilities and their families.

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* 12. Why do you think this has happened?

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* 13. What do you think the long-term impact of 2020 will be on people with learning disabilities, their postural care needs and long term health?

The future. Let's dream.

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* 14. What do you feel are the key outcomes for postural care services and how could they be monitored?

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* 15. If you had a magic wand, how would you like to see the Covid-19 pandemic change the way postural care is organised, provided and experienced by people with Learning Disabilities and their families?

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* 16. Any other comments, insights or concerns around postural care in people with Learning Disabilities.

Congratulations – that is it.
You have finished. We really appreciate your help in this project.
Please provide your email address to be entered into a prize draw for a £100 Amazon voucher.

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* 17. Enter into the £100 Amazon voucher prize draw

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* 18. I am happy to be contacted to discuss my answers further. (Be assured we will maintain your anonymity during reporting.)

If you have any questions or feedback, please email either Rachel Rachel@bornattherighttime.com or Sarah training@simplestuffworks.com
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