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Young People Survey August 2020

We have received funding from Children in Need for an exciting new ‘Breaking Isolation’ project to design and deliver a series of workshops to young people with M.E.

We would like to use your experience as a young person with M.E. to help us understand what to include in the workshop. Currently we are planning to hold these workshops in person in November 2020, and Spring 2021 (subject to any Covid-19 restrictions at that time). These workshops are available to young people aged 10+.

If you have any questions about the Breaking Isolation project, or would like to take part, please contact carla@actionforme.org.uk

Thank you for taking the time to complete this short questionnaire:

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* 1. Please tell us your age

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* 2. If you were to attend a workshop with other young people with M.E., what would be important to you about:

The venue

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* 3. If you were to attend a workshop with other young people with M.E., what would be important to you about:

The start time of the workshop

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* 4. If you were to attend a workshop with other young people with M.E., what would be important to you about:

The length of the workshop

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* 5. Please let us know about anything else that would be important to consider when planning the workshop:

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* 6. If we were unable to run the workshops in person due to Covid-19, would you consider attending an online workshop?

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* 7. On a scale of 1 -5, how easy do you find it to talk about your M.E. with the following people:

Close family members

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* 8. On a scale of 1 -5, how easy do you find it to talk about your M.E. with the following people:

Distant family members

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* 9. On a scale of 1 -5, how easy do you find it to talk about your M.E. with the following people:

Friends

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* 10. On a scale of 1 -5, how easy do you find it to talk about your M.E. with the following people:

GP

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* 11. On a scale of 1 -5, how easy do you find it to talk about your M.E. with the following people:

Therapist/Specialist Nurse

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* 12. On a scale of 1 -5, how easy do you find it to talk about your M.E. with the following people:

Teacher/education professional

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* 13. What would make a positive different to you when talking to the above people?

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* 14. What would help you to feel relaxed at the workshop?

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* 15. What activities might help you get to know other young people at the workshop? (e.g. games, arts, crafts)

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* 16. Please tell us about some of the difficulties you face as a young person with M.E.

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* 17. Finally, what would help you most to overcome these difficulties?

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