National Eye Research Centre Survey 2020

Your views are important to us.

The National Eye Research Centre is a UK fundraising charity funded by donations from the public. We fund research across all eye conditions affecting both children and adults. Our vision is a world where sight loss can be both prevented and cured, and further investment in research is the only way to make that happen. We already fund the best and brightest researchers across the UK, and with your help today, we can do even more.

By giving just 15 minutes of your time to complete this survey, you can help to shape our future communications so that we can reach even more people and fund even more life-changing research into eye disease. Because of you, we will beat sight loss faster. Thank you.

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* 1. What is your age?

17 or younger

18-20

21-29

30-39

40-49

50-59

60 or older

I prefer not to say

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* 2. What is your gender?

Female

Male

Other (specify)

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* 3. Where do you live?

East of England

East Midlands

London

North East of England

North West of England

Northern Ireland

Scotland

South East of England

South West of England

Wales

West Midlands

Yorkshire and the Humber

Overseas

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* 4. We’re using the descriptor ‘sight loss’ during this survey but are interested to know which words you feel best, and most inclusively, describe the concept of living with eye disease:
[please select as many as you wish]

Vision Impairment

Sight Loss

Blindness

Visual Impairment

Other (please specify)

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* 5. How are you affected by eye disease?

I am not affected (go to question 7)

I am personally affected

Someone I care about is affected

I am a healthcare professional working in the sector (go to question 7)

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* 6. If you or a loved one have experience of eye disease, please tell us the name of the condition and the impact it has on your or that person’s life:

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* 7. Do you currently donate to any charities – whether related to sight loss / eye disease or any other cause?

No [go to question 10]

Yes [go to question 8]

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* 8. If you’re happy to do so, please list the causes or charities you donate to below:

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* 9. If you donate to charity, which of the following statements best describes your main reason for donating to the charity/charities you support?
[please select the option you agree with the most]

I believe in the causes supported by the charities I donate to.

I am personally affected by the issues supported by the charites I donate to.

Someone I care about is affected by the issues supported by the charities I donate to.

I want to help to find solutions to issues that affect me or someone I care about.

I believe it is a social responsibility to support charities.

I think it’s important to help people less fortunate than myself.

I do not donate to any charity at this time.

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* 10. Who do you think are the main funders of medical research in the UK?
[please select your top three choices]

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* 11. What do you believe is the most important role for a charity?

To raise awareness of the cause they support.

To provide direct aid and care now to those affected.

To provide information and support to those affected.

To lobby government for policy change or increased funding.

To help find permanent solutions for the future.

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* 12. Thinking about each of the charities listed below, what do you currently believe each charity does?
[please select all that apply]

	Raises awareness of the cause	Provides information and resources	Provides help and care services	Funds medical research	Lobbies government
Cancer Research UK	Cancer Research UK Raises awareness of the cause	Cancer Research UK Provides information and resources	Cancer Research UK Provides help and care services	Cancer Research UK Funds medical research	Cancer Research UK Lobbies government
Macmillan Cancer Support	Macmillan Cancer Support Raises awareness of the cause	Macmillan Cancer Support Provides information and resources	Macmillan Cancer Support Provides help and care services	Macmillan Cancer Support Funds medical research	Macmillan Cancer Support Lobbies government
Blind Veterans UK	Blind Veterans UK Raises awareness of the cause	Blind Veterans UK Provides information and resources	Blind Veterans UK Provides help and care services	Blind Veterans UK Funds medical research	Blind Veterans UK Lobbies government
British Heart Foundation	British Heart Foundation Raises awareness of the cause	British Heart Foundation Provides information and resources	British Heart Foundation Provides help and care services	British Heart Foundation Funds medical research	British Heart Foundation Lobbies government
Shelter	Shelter Raises awareness of the cause	Shelter Provides information and resources	Shelter Provides help and care services	Shelter Funds medical research	Shelter Lobbies government
Samaritans	Samaritans Raises awareness of the cause	Samaritans Provides information and resources	Samaritans Provides help and care services	Samaritans Funds medical research	Samaritans Lobbies government
NSPCC	NSPCC Raises awareness of the cause	NSPCC Provides information and resources	NSPCC Provides help and care services	NSPCC Funds medical research	NSPCC Lobbies government
Guide Dogs for the Blind Association	Guide Dogs for the Blind Association Raises awareness of the cause	Guide Dogs for the Blind Association Provides information and resources	Guide Dogs for the Blind Association Provides help and care services	Guide Dogs for the Blind Association Funds medical research	Guide Dogs for the Blind Association Lobbies government
Royal National Institute of Blind People (RNIB)	Royal National Institute of Blind People (RNIB) Raises awareness of the cause	Royal National Institute of Blind People (RNIB) Provides information and resources	Royal National Institute of Blind People (RNIB) Provides help and care services	Royal National Institute of Blind People (RNIB) Funds medical research	Royal National Institute of Blind People (RNIB) Lobbies government
Fight for Sight	Fight for Sight Raises awareness of the cause	Fight for Sight Provides information and resources	Fight for Sight Provides help and care services	Fight for Sight Funds medical research	Fight for Sight Lobbies government
Macular Society	Macular Society Raises awareness of the cause	Macular Society Provides information and resources	Macular Society Provides help and care services	Macular Society Funds medical research	Macular Society Lobbies government

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* 13. Considering the diseases and health problems listed below, how would you rank them in order of severity? With 1 being the most severe, and 8 being the least severe.

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* 14. Thinking about the health and social issues listed below, do you personally know someone affected by any of these issues?
[please select all that apply]

Dementia

Heart Disease

Hearing loss

Alcohol and drug addiction

Cancer

Mental Illness

Sight loss

Diabetes

Homelessness

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* 15. Considering the health and social issues listed below, and the measures being taken to solve them, how would you describe the current situation?

	It’s a growing problem that needs a lot more funding to solve.	It’s a problem, but there’s lots of funding available to help solve it.	We’re making good progress and are close to solving this problem.	I don’t consider this to be a big problem, and there’s lots of help and support available.
Dementia	Dementia It’s a growing problem that needs a lot more funding to solve.	Dementia It’s a problem, but there’s lots of funding available to help solve it.	Dementia We’re making good progress and are close to solving this problem.	Dementia I don’t consider this to be a big problem, and there’s lots of help and support available.
Heart Disease	Heart Disease It’s a growing problem that needs a lot more funding to solve.	Heart Disease It’s a problem, but there’s lots of funding available to help solve it.	Heart Disease We’re making good progress and are close to solving this problem.	Heart Disease I don’t consider this to be a big problem, and there’s lots of help and support available.
Hearing loss	Hearing loss It’s a growing problem that needs a lot more funding to solve.	Hearing loss It’s a problem, but there’s lots of funding available to help solve it.	Hearing loss We’re making good progress and are close to solving this problem.	Hearing loss I don’t consider this to be a big problem, and there’s lots of help and support available.
Alcohol and drug rehabilitation	Alcohol and drug rehabilitation It’s a growing problem that needs a lot more funding to solve.	Alcohol and drug rehabilitation It’s a problem, but there’s lots of funding available to help solve it.	Alcohol and drug rehabilitation We’re making good progress and are close to solving this problem.	Alcohol and drug rehabilitation I don’t consider this to be a big problem, and there’s lots of help and support available.
Cancer	Cancer It’s a growing problem that needs a lot more funding to solve.	Cancer It’s a problem, but there’s lots of funding available to help solve it.	Cancer We’re making good progress and are close to solving this problem.	Cancer I don’t consider this to be a big problem, and there’s lots of help and support available.
Mental Illness	Mental Illness It’s a growing problem that needs a lot more funding to solve.	Mental Illness It’s a problem, but there’s lots of funding available to help solve it.	Mental Illness We’re making good progress and are close to solving this problem.	Mental Illness I don’t consider this to be a big problem, and there’s lots of help and support available.
Sight loss	Sight loss It’s a growing problem that needs a lot more funding to solve.	Sight loss It’s a problem, but there’s lots of funding available to help solve it.	Sight loss We’re making good progress and are close to solving this problem.	Sight loss I don’t consider this to be a big problem, and there’s lots of help and support available.
Diabetes	Diabetes It’s a growing problem that needs a lot more funding to solve.	Diabetes It’s a problem, but there’s lots of funding available to help solve it.	Diabetes We’re making good progress and are close to solving this problem.	Diabetes I don’t consider this to be a big problem, and there’s lots of help and support available.
Homelessness	Homelessness It’s a growing problem that needs a lot more funding to solve.	Homelessness It’s a problem, but there’s lots of funding available to help solve it.	Homelessness We’re making good progress and are close to solving this problem.	Homelessness I don’t consider this to be a big problem, and there’s lots of help and support available.

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* 16. Considering the charitable causes listed below, please rank them in order of which you believe receives the most support and funding and which receives the least. With 1 being the most supported, 8 being the least supported.

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* 17. Which of the following statements do you most agree with?

Charities should spend their time and money raising awareness of their cause.

Charities should spend their time and money helping people who are affected right now.

Charities should split their time and money between helping people now and funding research to eliminate the problem in the future.

Charities should spend their time and money funding research to eliminate the problem in the future.

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* 18. Thinking specifically about charities concerned with sight loss and eye disease, how well do you know the following charities?

	I know them and have supported in the past	I know them and I’m a current supporter	Have heard of them but don’t currently support them	Have heard of them but don’t know much about what they do	I have never heard of them
Guide Dogs for the Blind Association	Guide Dogs for the Blind Association I know them and have supported in the past	Guide Dogs for the Blind Association I know them and I’m a current supporter	Guide Dogs for the Blind Association Have heard of them but don’t currently support them	Guide Dogs for the Blind Association Have heard of them but don’t know much about what they do	Guide Dogs for the Blind Association I have never heard of them
Royal National Institute of Blind People (RNIB)	Royal National Institute of Blind People (RNIB) I know them and have supported in the past	Royal National Institute of Blind People (RNIB) I know them and I’m a current supporter	Royal National Institute of Blind People (RNIB) Have heard of them but don’t currently support them	Royal National Institute of Blind People (RNIB) Have heard of them but don’t know much about what they do	Royal National Institute of Blind People (RNIB) I have never heard of them
Blind Veterans UK	Blind Veterans UK I know them and have supported in the past	Blind Veterans UK I know them and I’m a current supporter	Blind Veterans UK Have heard of them but don’t currently support them	Blind Veterans UK Have heard of them but don’t know much about what they do	Blind Veterans UK I have never heard of them
Sightsavers International	Sightsavers International I know them and have supported in the past	Sightsavers International I know them and I’m a current supporter	Sightsavers International Have heard of them but don’t currently support them	Sightsavers International Have heard of them but don’t know much about what they do	Sightsavers International I have never heard of them
Retina UK	Retina UK I know them and have supported in the past	Retina UK I know them and I’m a current supporter	Retina UK Have heard of them but don’t currently support them	Retina UK Have heard of them but don’t know much about what they do	Retina UK I have never heard of them
Moorfields Eye Charity	Moorfields Eye Charity I know them and have supported in the past	Moorfields Eye Charity I know them and I’m a current supporter	Moorfields Eye Charity Have heard of them but don’t currently support them	Moorfields Eye Charity Have heard of them but don’t know much about what they do	Moorfields Eye Charity I have never heard of them
Fight for Sight	Fight for Sight I know them and have supported in the past	Fight for Sight I know them and I’m a current supporter	Fight for Sight Have heard of them but don’t currently support them	Fight for Sight Have heard of them but don’t know much about what they do	Fight for Sight I have never heard of them
Glaucoma UK	Glaucoma UK I know them and have supported in the past	Glaucoma UK I know them and I’m a current supporter	Glaucoma UK Have heard of them but don’t currently support them	Glaucoma UK Have heard of them but don’t know much about what they do	Glaucoma UK I have never heard of them
National Eye Research Centre (NERC)	National Eye Research Centre (NERC) I know them and have supported in the past	National Eye Research Centre (NERC) I know them and I’m a current supporter	National Eye Research Centre (NERC) Have heard of them but don’t currently support them	National Eye Research Centre (NERC) Have heard of them but don’t know much about what they do	National Eye Research Centre (NERC) I have never heard of them
Macular Society	Macular Society I know them and have supported in the past	Macular Society I know them and I’m a current supporter	Macular Society Have heard of them but don’t currently support them	Macular Society Have heard of them but don’t know much about what they do	Macular Society I have never heard of them

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* 19. What do you believe to be the main cause of sight loss in the UK?

Most people living with sight loss have done so since birth.

Most sight loss is caused as a result of an eye condition.

Most sight loss is a natural result of getting older.

Most sight loss is caused by accidents and injuries.

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* 20. How much do you know about the eye conditions listed below?

	I know a lot about it and live with this condition myself	I know a lot about it and know someone who lives with it	I know a lot about it	I know a moderate amount	I’ve heard of it but don’t know what it is	I am unaware of this condition
Age-related macular degeneration	Age-related macular degeneration I know a lot about it and live with this condition myself	Age-related macular degeneration I know a lot about it and know someone who lives with it	Age-related macular degeneration I know a lot about it	Age-related macular degeneration I know a moderate amount	Age-related macular degeneration I’ve heard of it but don’t know what it is	Age-related macular degeneration I am unaware of this condition
Amblyopia	Amblyopia I know a lot about it and live with this condition myself	Amblyopia I know a lot about it and know someone who lives with it	Amblyopia I know a lot about it	Amblyopia I know a moderate amount	Amblyopia I’ve heard of it but don’t know what it is	Amblyopia I am unaware of this condition
Cataracts	Cataracts I know a lot about it and live with this condition myself	Cataracts I know a lot about it and know someone who lives with it	Cataracts I know a lot about it	Cataracts I know a moderate amount	Cataracts I’ve heard of it but don’t know what it is	Cataracts I am unaware of this condition
Charles Bonnet Syndrome	Charles Bonnet Syndrome I know a lot about it and live with this condition myself	Charles Bonnet Syndrome I know a lot about it and know someone who lives with it	Charles Bonnet Syndrome I know a lot about it	Charles Bonnet Syndrome I know a moderate amount	Charles Bonnet Syndrome I’ve heard of it but don’t know what it is	Charles Bonnet Syndrome I am unaware of this condition
Corneal Dystrophy	Corneal Dystrophy I know a lot about it and live with this condition myself	Corneal Dystrophy I know a lot about it and know someone who lives with it	Corneal Dystrophy I know a lot about it	Corneal Dystrophy I know a moderate amount	Corneal Dystrophy I’ve heard of it but don’t know what it is	Corneal Dystrophy I am unaware of this condition
Diabetic Retinopathy	Diabetic Retinopathy I know a lot about it and live with this condition myself	Diabetic Retinopathy I know a lot about it and know someone who lives with it	Diabetic Retinopathy I know a lot about it	Diabetic Retinopathy I know a moderate amount	Diabetic Retinopathy I’ve heard of it but don’t know what it is	Diabetic Retinopathy I am unaware of this condition
Glaucoma	Glaucoma I know a lot about it and live with this condition myself	Glaucoma I know a lot about it and know someone who lives with it	Glaucoma I know a lot about it	Glaucoma I know a moderate amount	Glaucoma I’ve heard of it but don’t know what it is	Glaucoma I am unaware of this condition
Keratoconus	Keratoconus I know a lot about it and live with this condition myself	Keratoconus I know a lot about it and know someone who lives with it	Keratoconus I know a lot about it	Keratoconus I know a moderate amount	Keratoconus I’ve heard of it but don’t know what it is	Keratoconus I am unaware of this condition
Leber's Hereditary Optic Neuropathy	Leber's Hereditary Optic Neuropathy I know a lot about it and live with this condition myself	Leber's Hereditary Optic Neuropathy I know a lot about it and know someone who lives with it	Leber's Hereditary Optic Neuropathy I know a lot about it	Leber's Hereditary Optic Neuropathy I know a moderate amount	Leber's Hereditary Optic Neuropathy I’ve heard of it but don’t know what it is	Leber's Hereditary Optic Neuropathy I am unaware of this condition
Retinitis Pigmentosa	Retinitis Pigmentosa I know a lot about it and live with this condition myself	Retinitis Pigmentosa I know a lot about it and know someone who lives with it	Retinitis Pigmentosa I know a lot about it	Retinitis Pigmentosa I know a moderate amount	Retinitis Pigmentosa I’ve heard of it but don’t know what it is	Retinitis Pigmentosa I am unaware of this condition
Nystagmus	Nystagmus I know a lot about it and live with this condition myself	Nystagmus I know a lot about it and know someone who lives with it	Nystagmus I know a lot about it	Nystagmus I know a moderate amount	Nystagmus I’ve heard of it but don’t know what it is	Nystagmus I am unaware of this condition
Ocular Melanoma (Eye Cancer)	Ocular Melanoma (Eye Cancer) I know a lot about it and live with this condition myself	Ocular Melanoma (Eye Cancer) I know a lot about it and know someone who lives with it	Ocular Melanoma (Eye Cancer) I know a lot about it	Ocular Melanoma (Eye Cancer) I know a moderate amount	Ocular Melanoma (Eye Cancer) I’ve heard of it but don’t know what it is	Ocular Melanoma (Eye Cancer) I am unaware of this condition
Photophobia (Light Sensitivity)	Photophobia (Light Sensitivity) I know a lot about it and live with this condition myself	Photophobia (Light Sensitivity) I know a lot about it and know someone who lives with it	Photophobia (Light Sensitivity) I know a lot about it	Photophobia (Light Sensitivity) I know a moderate amount	Photophobia (Light Sensitivity) I’ve heard of it but don’t know what it is	Photophobia (Light Sensitivity) I am unaware of this condition
Stargardt Disease	Stargardt Disease I know a lot about it and live with this condition myself	Stargardt Disease I know a lot about it and know someone who lives with it	Stargardt Disease I know a lot about it	Stargardt Disease I know a moderate amount	Stargardt Disease I’ve heard of it but don’t know what it is	Stargardt Disease I am unaware of this condition
Uveitis	Uveitis I know a lot about it and live with this condition myself	Uveitis I know a lot about it and know someone who lives with it	Uveitis I know a lot about it	Uveitis I know a moderate amount	Uveitis I’ve heard of it but don’t know what it is	Uveitis I am unaware of this condition

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* 21. Which of the following statements would you most agree with?

Most eye diseases can be treated if they are caught in the early stages.

Most eye diseases do not lead to sight loss.

More needs to be done to find means of prevention and cures in the future.

I don’t believe medical research will find a prevention or cure for most eye diseases.

I don’t really know that much about eye disease and the causes of sight loss.

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* 22. As part of our strategic review we are considering changing our name to one that would best describe who we are and what we do. We are not a research centre that directly employs researchers, instead we fund eye research scientists in UK universities. We are fully funded by public donations and do not receive any government funding.

Please rank the following options based on which you believe best describes a fundraising charity that makes grants for eye research.

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* 23. Please suggest any other alternative names you think we should consider:

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* 24. If you have any further comments, please feel free to add them here:

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* 25. Your feedback is extremely important to us. With your help we can continue to reach more people and push closer to our goal of making sight loss a thing of the past. Would you be willing to receive the results of this survey and occasionally hear from us about breaking news from the eye research world? If so, please provide your email address. We won’t bombard you and you can unsubscribe at any time.

No, thank you.

Yes I’d like to hear – Please provide your email address now, you can change your mind at any time:

email address

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* 26. As we develop our organisation to better fulfil our vision of beating sight loss faster, we would welcome your thoughts again in the future. Would you be willing to be contacted occasionally via email to ask for your thoughts on something we are working on? Of course, you can change your mind at any time.

No, thank you.

Yes, I’d be happy to help.
If you haven’t provided your email already, please do so here, you can unsubscribe at any time:

email address

National Eye Research Centre Survey 2020

Your views are important to us.

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* 1. What is your age?

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* 2. What is your gender?

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* 3. Where do you live?

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* 4. We’re using the descriptor ‘sight loss’ during this survey but are interested to know which words you feel best, and most inclusively, describe the concept of living with eye disease:[please select as many as you wish]

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* 5. How are you affected by eye disease?

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* 6. If you or a loved one have experience of eye disease, please tell us the name of the condition and the impact it has on your or that person’s life:

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* 7. Do you currently donate to any charities – whether related to sight loss / eye disease or any other cause?

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* 8. If you’re happy to do so, please list the causes or charities you donate to below:

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* 9. If you donate to charity, which of the following statements best describes your main reason for donating to the charity/charities you support?[please select the option you agree with the most]

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* 10. Who do you think are the main funders of medical research in the UK?[please select your top three choices]

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* 11. What do you believe is the most important role for a charity?

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* 12. Thinking about each of the charities listed below, what do you currently believe each charity does? [please select all that apply]

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* 13. Considering the diseases and health problems listed below, how would you rank them in order of severity? With 1 being the most severe, and 8 being the least severe.

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* 14. Thinking about the health and social issues listed below, do you personally know someone affected by any of these issues? [please select all that apply]

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* 15. Considering the health and social issues listed below, and the measures being taken to solve them, how would you describe the current situation?

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* 16. Considering the charitable causes listed below, please rank them in order of which you believe receives the most support and funding and which receives the least. With 1 being the most supported, 8 being the least supported.

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* 17. Which of the following statements do you most agree with?

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* 18. Thinking specifically about charities concerned with sight loss and eye disease, how well do you know the following charities?

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* 19. What do you believe to be the main cause of sight loss in the UK?

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* 20. How much do you know about the eye conditions listed below?

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* 21. Which of the following statements would you most agree with?

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* 23. Please suggest any other alternative names you think we should consider:

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* 24. If you have any further comments, please feel free to add them here:

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* 4. We’re using the descriptor ‘sight loss’ during this survey but are interested to know which words you feel best, and most inclusively, describe the concept of living with eye disease:
[please select as many as you wish]

* 9. If you donate to charity, which of the following statements best describes your main reason for donating to the charity/charities you support?
[please select the option you agree with the most]

* 10. Who do you think are the main funders of medical research in the UK?
[please select your top three choices]

* 12. Thinking about each of the charities listed below, what do you currently believe each charity does?
[please select all that apply]

* 14. Thinking about the health and social issues listed below, do you personally know someone affected by any of these issues?
[please select all that apply]