Your views are important to us.

The National Eye Research Centre is a UK fundraising charity funded by donations from the public. We fund research across all eye conditions affecting both children and adults. Our vision is a world where sight loss can be both prevented and cured, and further investment in research is the only way to make that happen. We already fund the best and brightest researchers across the UK, and with your help today, we can do even more.
 
By giving just 15 minutes of your time to complete this survey, you can help to shape our future communications so that we can reach even more people and fund even more life-changing research into eye disease. Because of you, we will beat sight loss faster. Thank you.

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* 1. What is your age?

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* 2. What is your gender?

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* 3. Where do you live?

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* 4. We’re using the descriptor ‘sight loss’ during this survey but are interested to know which words you feel best, and most inclusively, describe the concept of living with eye disease:
[please select as many as you wish]

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* 5. How are you affected by eye disease?

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* 6. If you or a loved one have experience of eye disease, please tell us the name of the condition and the impact it has on your or that person’s life:

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* 7. Do you currently donate to any charities – whether related to sight loss / eye disease or any other cause?

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* 8. If you’re happy to do so, please list the causes or charities you donate to below:

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* 9. If you donate to charity, which of the following statements best describes your main reason for donating to the charity/charities you support?
[please select the option you agree with the most]

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* 10. Who do you think are the main funders of medical research in the UK?
[please select your top three choices]

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* 11. What do you believe is the most important role for a charity?

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* 12. Thinking about each of the charities listed below, what do you currently believe each charity does?
[please select all that apply]

  Raises awareness of the cause Provides information and resources Provides help and care services Funds medical research Lobbies government
Cancer Research UK
Macmillan Cancer Support
Blind Veterans UK
British Heart Foundation
Shelter
Samaritans
NSPCC
Guide Dogs for the Blind Association
Royal National Institute of Blind People (RNIB)
Fight for Sight
Macular Society

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* 13. Considering the diseases and health problems listed below, how would you rank them in order of severity? With 1 being the most severe, and 8 being the least severe.

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* 14. Thinking about the health and social issues listed below, do you personally know someone affected by any of these issues?
[please select all that apply]

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* 15. Considering the health and social issues listed below, and the measures being taken to solve them, how would you describe the current situation?

  It’s a growing problem that needs a lot more funding to solve. It’s a problem, but there’s lots of funding available to help solve it. We’re making good progress and are close to solving this problem. I don’t consider this to be a big problem, and there’s lots of help and support available.
Dementia
Heart Disease
Hearing loss
Alcohol and drug rehabilitation
Cancer
Mental Illness
Sight loss
Diabetes
Homelessness

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* 16. Considering the charitable causes listed below, please rank them in order of which you believe receives the most support and funding and which receives the least. With 1 being the most supported, 8 being the least supported.

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* 17. Which of the following statements do you most agree with?

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* 18. Thinking specifically about charities concerned with sight loss and eye disease, how well do you know the following charities?

  I know them and have supported in the past I know them and I’m a current supporter Have heard of them but don’t currently support them Have heard of them but don’t know much about what they do I have never heard of them
Guide Dogs for the Blind Association
Royal National Institute of Blind People (RNIB)
Blind Veterans UK
Sightsavers International
Retina UK
Moorfields Eye Charity
Fight for Sight
Glaucoma UK
National Eye Research Centre (NERC)
Macular Society

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* 19. What do you believe to be the main cause of sight loss in the UK?

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* 20. How much do you know about the eye conditions listed below?

  I know a lot about it and live with this condition myself I know a lot about it and know someone who lives with it I know a lot about it I know a moderate amount I’ve heard of it but don’t know what it is I am unaware of this condition
Age-related macular degeneration
Amblyopia
Cataracts
Charles Bonnet Syndrome
Corneal Dystrophy
Diabetic Retinopathy
Glaucoma
Keratoconus
Leber's Hereditary Optic Neuropathy
Retinitis Pigmentosa
Nystagmus
Ocular Melanoma (Eye Cancer)
Photophobia (Light Sensitivity)
Stargardt Disease
Uveitis

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* 21. Which of the following statements would you most agree with?

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* 22. As part of our strategic review we are considering changing our name to one that would best describe who we are and what we do. We are not a research centre that directly employs researchers, instead we fund eye research scientists in UK universities. We are fully funded by public donations and do not receive any government funding.

Please rank the following options based on which you believe best describes a fundraising charity that makes grants for eye research.

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* 23. Please suggest any other alternative names you think we should consider:

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* 24. If you have any further comments, please feel free to add them here:

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* 25. Your feedback is extremely important to us. With your help we can continue to reach more people and push closer to our goal of making sight loss a thing of the past. Would you be willing to receive the results of this survey and occasionally hear from us about breaking news from the eye research world? If so, please provide your email address. We won’t bombard you and you can unsubscribe at any time.

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* 26. As we develop our organisation to better fulfil our vision of beating sight loss faster, we would welcome your thoughts again in the future. Would you be willing to be contacted occasionally via email to ask for your thoughts on something we are working on? Of course, you can change your mind at any time.

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