Welcome to My Survey

WHY is a charity providing free emotional/psychological support through professional counselling for anyone who has been affected by a diagnosis of cancer or another life threatening condition. WHY have noticed that the majority of people accessing their services are female, and therefore, my research will be aimed at finding out the reasoning behind why men may/may not choose to use the counselling services provided to them. 
 
What is this study about?
I am looking for individuals to take part in a 23-item questionnaire. This questionnaire will involve rating statements on a 5-point likert scale which focuses on your experience of cancer. In particular, it will focus on your experience with the emotional/psychological support services available to you. I am interested in why/why not you chose to use support services. I am also interested in gaining insight into how these services could be improved to better suit your needs.
 
What would I need to do?
I would like you to fill out the 23-item questionnaire either electronically via the survey link or using a paper copy, whichever you would prefer. The questionnaire will ask you to respond to statements on a 5-point likert scale whereby 1 = strongly disagree, 2 = disagree, 3 = neither agree nor disagree, 4 = agree and 5 = strongly agree. The survey will look at whether you have received psychological/emotional support, your awareness of the services available to you and your personal preference and feelings surrounding what type of support is available and what type of support you would wish to receive should you require it.
 
Do I have to take part?
Taking part in this research is entirely voluntary, and you are free to make your own choice about whether you want to participate. If you agree to take part, you can choose not to answer any questions that you do not want to and you are free to withdraw at any time.
 
What will happen to the information I provide?
Any potentially identifying details, including your name, will not be asked for in the questionnaire and therefore, your identity kept anonymous. The questionnaire information and website recording will not be linked to any contact details that you provide and will be stored separately so you cannot be identified. WHY have a secure shared drive which is backed up daily from their IT company which is where the data will be stored. Any paper documents e.g. consent forms, and questionnaires will be saved in a locked cabinet. Any written notes will be scanned into their computer system and saved securely there and then any paper copies of things can be shredded, of which they have a secure mechanism of disposing of confidential waste.
Once the project is completed, the information you have given to me will be kept safely by the University of Bath. If you give your consent, it may be used by other genuine researchers, with the University of Bath’s approval, under the strict rules governing the confidentiality of your information. So again, your name, or any material that might identify you, will never be used or given to anyone.
 
What will happen to the results of this research?
What you tell me will inform WHY’s research on why men may chose/not chose to use their services. This information can then be used to help improve the services they provide, and perhaps, make these services more ‘male-friendly’ if necessary. I may use extracts taken from what you have told me, however these would not identify you to anyone. The findings of the research may also be published in research journals or used in presentations. If you would like to be sent a summary of the findings, we can arrange for this.

Please direct any concerns about your participation to the ethics committee: psychology-ethics@bath.ac.uk

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* 1. Do you confirm that you are male?

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* 2. Do you confirm that you are you currently being affected by cancer, whether this is you personally, or the effect of a family member, or a friend having cancer on you

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* 3. Have you been given information explaining about the study?

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* 4. Have you had an opportunity to ask questions and discuss this study?

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* 5. Have you received satisfactory answers to all questions you asked?

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* 6. Have you received enough information about the study for you to make a decision about your participation?

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* 7. Do you understand that you are free to withdraw from the study prior to giving final consent?

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* 8. By ticking the text-box that says 'I agree' I hereby fully and freely consent to my participation in this study. I understand the nature and purpose of the procedures involved in this study. I understand and acknowledge that the investigation is designed to promote scientific knowledge and that the University of Bath and We Hear You (WHY) will use the data I provide for no purpose other than research. I understand the data I provide will be kept confidential. My name or other identifying information will not be disclosed in any presentation or publication of the research. I understand that the University of Bath and/or We Hear You (WHY) may use the data collected for this project in a future research project but that the conditions on this form under which I have provided the data will still apply. If you do not agree to take part please tick 'I do not agree'.

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