SEND family resource feedback survey

The SEND reforms in England: an introductory guide for families of children who need palliative care

Please spend a few minutes telling us what you think about Together for Short Lives' resource 'The special educational needs and disability (SEND) reforms in England: an introductory guide for families of children and young people with life-limiting and life-threatening conditions aged 0-25'.

Our guide aims to help families of children and young people in England with life-limiting conditions join-up their assessments, plans and services across education, health and social care. Free to download and use, it helps families to understand their rights and make the most of the new special educational needs and disability (SEND) system, which is being implemented by government, the NHS, local councils, education providers and others. It has been funded by the Department for Education and written by Anna Gill OBE, a parent carer of a young person with a life-limiting condition, on behalf of the Council for Disabled Children (CDC).

Your feedback is vital in helping us to understand whether this resource is useful to families - and is achieving what we wanted it to. Thanks for your help!

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* 1. Are you a family member of a child or young person aged 0 – 25 with a life-limiting or life-threatening condition?

Yes

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* 2. Has our resource improved your knowledge and understanding of the following things?

	Fully	Partially	Not at all
How a special educational need (SEN) is defined and which children and young people with life-limiting conditions are likely to have them.	How a special educational need (SEN) is defined and which children and young people with life-limiting conditions are likely to have them. Fully	How a special educational need (SEN) is defined and which children and young people with life-limiting conditions are likely to have them. Partially	How a special educational need (SEN) is defined and which children and young people with life-limiting conditions are likely to have them. Not at all
What a local offer is, how you can access it, how you can comment on it and how you can influence it.	What a local offer is, how you can access it, how you can comment on it and how you can influence it. Fully	What a local offer is, how you can access it, how you can comment on it and how you can influence it. Partially	What a local offer is, how you can access it, how you can comment on it and how you can influence it. Not at all
What an education, health and care (EHC) plan is, the positive impact they can have and which children and young people with life-limiting conditions are eligible for them.	What an education, health and care (EHC) plan is, the positive impact they can have and which children and young people with life-limiting conditions are eligible for them. Fully	What an education, health and care (EHC) plan is, the positive impact they can have and which children and young people with life-limiting conditions are eligible for them. Partially	What an education, health and care (EHC) plan is, the positive impact they can have and which children and young people with life-limiting conditions are eligible for them. Not at all
How you can request that your child is assessed for an education, health and care plan.	How you can request that your child is assessed for an education, health and care plan. Fully	How you can request that your child is assessed for an education, health and care plan. Partially	How you can request that your child is assessed for an education, health and care plan. Not at all
What you can expect from the EHC plan process.	What you can expect from the EHC plan process. Fully	What you can expect from the EHC plan process. Partially	What you can expect from the EHC plan process. Not at all
What outcomes and aspirations are and how they relate to the SEND system.	What outcomes and aspirations are and how they relate to the SEND system. Fully	What outcomes and aspirations are and how they relate to the SEND system. Partially	What outcomes and aspirations are and how they relate to the SEND system. Not at all
What outcomes and aspirations children and young people with life-limiting conditions can reasonably expect to achieve - and include in their EHC plan.	What outcomes and aspirations children and young people with life-limiting conditions can reasonably expect to achieve - and include in their EHC plan. Fully	What outcomes and aspirations children and young people with life-limiting conditions can reasonably expect to achieve - and include in their EHC plan. Partially	What outcomes and aspirations children and young people with life-limiting conditions can reasonably expect to achieve - and include in their EHC plan. Not at all
What a personal budget is, which children and young people are eligible for them, how to request one and how to get support in managing one.	What a personal budget is, which children and young people are eligible for them, how to request one and how to get support in managing one. Fully	What a personal budget is, which children and young people are eligible for them, how to request one and how to get support in managing one. Partially	What a personal budget is, which children and young people are eligible for them, how to request one and how to get support in managing one. Not at all
What happens when a young person with a life-limiting condition reaches adulthood (in relation to SEND).	What happens when a young person with a life-limiting condition reaches adulthood (in relation to SEND). Fully	What happens when a young person with a life-limiting condition reaches adulthood (in relation to SEND). Partially	What happens when a young person with a life-limiting condition reaches adulthood (in relation to SEND). Not at all
How you can complain and appeal against decisions relating to assessments, plans and personal budgets.	How you can complain and appeal against decisions relating to assessments, plans and personal budgets. Fully	How you can complain and appeal against decisions relating to assessments, plans and personal budgets. Partially	How you can complain and appeal against decisions relating to assessments, plans and personal budgets. Not at all
Who holds the local SEND system to account and how you can influence it.	Who holds the local SEND system to account and how you can influence it. Fully	Who holds the local SEND system to account and how you can influence it. Partially	Who holds the local SEND system to account and how you can influence it. Not at all
Where you can go to access help and support about the SEND system.	Where you can go to access help and support about the SEND system. Fully	Where you can go to access help and support about the SEND system. Partially	Where you can go to access help and support about the SEND system. Not at all

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* 3. Do you find our resource easy to find your way around?

Yes

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* 4. Is our resource clear and easy to understand?

Yes

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* 5. Would you recommend our resource to another family?

Yes

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* 1. Are you a family member of a child or young person aged 0 – 25 with a life-limiting or life-threatening condition?

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* 2. Has our resource improved your knowledge and understanding of the following things?

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* 3. Do you find our resource easy to find your way around?

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* 4. Is our resource clear and easy to understand?

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* 5. Would you recommend our resource to another family?

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* 6. Do you have anything else which you would like to tell us about the resource? Please let us know here: