Cerebra and Leeds University Continence Supplies Survey 2023 |
Why are we carrying out this survey?
Cerebra has frequently received reports from families who have encountered difficulties when trying to access continence supplies for their disabled child.
We would like to understand more about the experiences of families of disabled children who have encountered these kind of difficulties, when / how they happened and what the consequences were for the family. We are also interested in any possible explanation about the refusal / limitation of continence supplies provided to you by your local health service.
Please do not provide any personal identifying details in this survey – such as your (or any other person’s) name or addresses, etc. The survey responses will be checked to ensure that all identifying details are removed and the anonymised responses will then be analysed by our Legal Entitlements and Problem-solving (LEaP) Project Research Team under the supervision of Professor Luke Clements, Cerebra Professor of Social Justice at the School of Law, University of Leeds.
The findings of this research will be published in the Spring of 2024. Previous research reports of this kind produced by the LEaP Project can be accessed here.
If you know of any other parent carers of disabled children who you think would be interested in completing the survey, please feel free to share it with them.
The survey has 14 questions and it should take between five to ten minutes to complete it.
For any further information please email Derek Tilley at derekt@cerebra.org.uk
The survey will close on 31 July 2023.
If you have encountered difficulties in accessing suitable continence supplies for your disabled child you may find the list of resources / information we have compiled of some value: to access this, please click here.