Thank you for taking the time to give us your feedback on Avery, we really appreciate it. The book was inspired by children and families taking part in the IMAGINE ID research project (see the link for more details about the study).

* 1. Has the book helped you feel more included in the wider rare disease community?

* 2. Having read the book, are you/your family more interested in taking part in research?

* 3. Has this book helped you/your family to talk more about rare diseases?

* 4. Rate the book (10 the best)

* 5. Please tell us what you think about Avery i.e. has it helped? Who should have a copy? Would you change anything? Did you like the story/message?

* 6. Any other feedback or comments about Avery?