Welcome

Help set the research agenda for degenerative cervical myelopathy
What is DCM?

DCM is an umbrella term that describes a number of conditions in which the cervical spinal cord is injured due to degeneration of surrounding structures. Wear and tear of the bones, joints, ligaments and discs of the cervical spine can lead to deformities of the structure of the spine, compressing the spinal cord that is contained within it. Another common name for DCM you may have heard is Cervical Spondylotic Myelopathy (CSM) or Ossification of the Posterior Longitudinal Ligament (OPLL).
What is AOSpine RECODE-DCM?

RECODE DCM [Research Objectives and Common Data Elements for Degenerative Cervical Myelopathy] is a collaborative project which aims to engage both the people who live with DCM and those who support or treat DCM, from across the globe, to reach a consensus on the Top 10 Research Priorities in DCM.

Our hope is that future DCM research and funding is guided by our collective list and that these uncertainties will be promptly and thoroughly explored. This is an opportunity to shape the future of DCM research, and ensure it reflects the needs of those living and working with the condition.

The project is supported by the James Lind Alliance, and further information can be found at recode-dcm.com
The Story so Far: Round 1 Survey

We initially conducted a survey asking for ideas.  This survey was answered by 429 people and generated over 3500 research suggestions.

We have analyzed these questions and condensed these into 74 different summary questions, across themes including diagnosis, treatment and long-term care.
Now to vote: Round 2 Survey

We now need to hear from you - which of these do you think are most important!?

We will present you with the 74 questions, produced from the previous survey round.  First please create a shortlist of your preferred questions, and then on the following page select 10 of these which matter to you the most.   You can select less than, but no more than 10. 

We will start by asking you about your experience of DCM, in order for us to ensure we have a full representation of the disease in our survey. 

The findings from this survey will be used to inform a face-to-face consensus meeting, where a final list of 10 will be agreed by patients, carers, surgeons and other health care professionals.

For further information on this project please go to www.recode-dcm.com or contact us at admin@recode-dcm.com

Please forward this survey to anyone you think may be interested.  All participants wishing to be acknowledged on the final publication, will be (requires submission of your email address for follow up).

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