CPAP Support Materials HCP Survey We are working on behalf of NHS England to create accessible information for people that use CPAP machines (information will be produced for people with a learning disability, autistic people, healthcare professionals, paid and unpaid carers).We would like your help as a healthcare professional to understand the difficulties experienced by people with a learning disability and autistic people who are prescribed CPAP. Question Title * 1. Can you please confirm if you currently work with patients prescribed CPAP who have a learning disability and/or autism: Yes - people with a learning disability Yes - autistic people Yes - both No Question Title * 2. Do you have materials which are accessible format for people who have a learning disability to help them understand why they need to use a CPAP machine? Yes No Question Title * 3. Do you have materials accessible for people who are autistic to help them understand why they need to use a CPAP machine? Yes No Question Title * 4. If you have literature/support materials in an accessible format, what types of literature do you provide? Leaflets or booklet I/someone demonstrates to the patient I/someone explains to the patient Videos Anything else (please state) Question Title * 5. If you have literature/support materials in an accessible format that you provide, do you find that people find some materials are more useful than others? Please rank the materials usefulness as reported to you by patients (1 most useful, 5 least useful): 1 2 3 4 5 Leaflets or booklets Leaflets or booklets 1 Leaflets or booklets 2 Leaflets or booklets 3 Leaflets or booklets 4 Leaflets or booklets 5 Demonstrations to the patient Demonstrations to the patient 1 Demonstrations to the patient 2 Demonstrations to the patient 3 Demonstrations to the patient 4 Demonstrations to the patient 5 Explaining to the patient Explaining to the patient 1 Explaining to the patient 2 Explaining to the patient 3 Explaining to the patient 4 Explaining to the patient 5 Videos Videos 1 Videos 2 Videos 3 Videos 4 Videos 5 Something else – please list Question Title * 6. If we produce videos and offer signing, would your patients prefer: British Sign Language (BSL) Makaton None Question Title * 7. What information would you find helpful to share with patients to help them to use their CPAP machine more? Question Title * 8. Usually, people are advised to use their CPAP machine every night. On average, how regularly do you find these patient groups use their CPAP therapy? Every night Most nights Once a week Occasionally Never Question Title * 9. What do you believe are the barriers to using CPAP devices for these patient groups? (tick all that apply) Patients don’t understand how to use it Patients don’t understand what it is for Patients don’t like how it feels Patients don’t like the noise It makes the patient’s mouth feel dry Patients don’t like the mask It upsets other people when the patient uses it I am worried about the cost of running the machine Anything else (please state) Question Title * 10. Do you understand the implications for patients if they do not use their CPAP machine as prescribed? Yes No I am not sure Question Title * 11. If you answered yes to the above, what do you understand the implications to be? Question Title * 12. What interventions or support have you found to be successful in supporting people with a learning disability and autistic people to use their CPAP machine as prescribed? Question Title * 13. What other support do you think would help these patient groups to use their CPAP device? Question Title * 14. What type of mask do you typically prescribe for autistic people? Full face mask Nasal mask Nasal pillow mask Question Title * 15. What concerns do autistic people report in relation to wearing their CPAP mask? It is uncomfortable It doesn’t fit It makes them feel like they are suffocating It comes off when they are asleep Anything else Question Title * 16. What type of mask do you typically prescribe for people with a learning disability? Full face mask Nasal mask Nasal pillow mask Question Title * 17. What concerns do people with a learning disability report in relation to wearing their CPAP mask? It is uncomfortable It doesn’t fit It makes them feel like they are suffocating It comes off when they are asleep Anything else Thank you for taking the time to complete our survey. Done
