Perceptions of Progress in Parkinson's

Please note - The Cure Parkinson's Trust and Parkinson's Movement will not share your information with any third party unless otherwise disclosed. We do hope that the findings from this survey will inform our research meeting on 4th April 2016 and if you provide your contact details at the end of this survey we will send you our findings.

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* 1. Are you:

A Parkinson's clinician or neurologist

A Parkinson's scientist

A person with Parkinson's

A caregiver or someone who lives with someone with Parkinson's

A representative from industry working in the field of Parkinson's

Someone who works within a Parkinson's patient organisation (or other related)

A healthcare professional involved with Parkinson's

Other (please specify)

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* 2. If you had US $100 million to invest in making the biggest impact on the lives of people with Parkinson's within the next five years, where would you spend it and why?

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* 3. Which three fields of Parkinson's research do you think offer the most exciting prospects for a breakthrough in Parkinson's?

Cell therapy

Gene therapy

New treatments for mitochondrial dysfunction

Genetics

Neurotrophic/growth factors

Alpha-synuclein disaggregation

New pharmaceutical drugs

Repurposed/repositioned drugs from other conditions

Biomarkers

Better understanding of the causes

Stratification of patients

Improving clinical trials e.g. recruitment, outcome measures, speed and compliance

New treatments for non motor symptoms

New ways of measuring Parkinson's

Increasing involvement of people with Parkinson's in shaping the research agenda

Don't know/not sure/I am not comfortable answering

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* 4. There are a number of clinical trials under way which have the potential to be "disease modifying" as opposed to showing only symptomatic benefit. How would you rate the chance of there being a treatment for Parkinson's which demonstrates robust clinical evidence of some reversal of the disease in any people with Parkinson's within 5 years, 10 years or 20 years?

	5 years	10 years	20 years
Extremely likely	Extremely likely 5 years	Extremely likely 10 years	Extremely likely 20 years
Likely	Likely 5 years	Likely 10 years	Likely 20 years
Possible	Possible 5 years	Possible 10 years	Possible 20 years
Unlikely	Unlikely 5 years	Unlikely 10 years	Unlikely 20 years
Extremely unlikely	Extremely unlikely 5 years	Extremely unlikely 10 years	Extremely unlikely 20 years
No opinion	No opinion 5 years	No opinion 10 years	No opinion 20 years

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* 5. Apart from the standard drug treatments, what would be the top 3 things that you would advise people with Parkinson's to do to maintain their health?

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* 6. What are the 3 biggest barriers to progress in Parkinson's research? e.g. investment, recruitment, red-tape, understanding of cause, heterogeneity etc.

Perceptions of Progress in Parkinson's

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* 1. Are you:

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* 2. If you had US $100 million to invest in making the biggest impact on the lives of people with Parkinson's within the next five years, where would you spend it and why?

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* 3. Which three fields of Parkinson's research do you think offer the most exciting prospects for a breakthrough in Parkinson's?

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* 5. Apart from the standard drug treatments, what would be the top 3 things that you would advise people with Parkinson's to do to maintain their health?

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* 6. What are the 3 biggest barriers to progress in Parkinson's research? e.g. investment, recruitment, red-tape, understanding of cause, heterogeneity etc.

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* 7. How do you think people with Parkinson's can best assist progress with Parkinson's research?

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* 8. If you could offer three bits of advice to (other) people with Parkinson's, what would they be?

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* 9. What are the three most important issues to consider when a person with Parkinson's is deciding whether or not to take part in a clinical trial?

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* 10. What are the three most important questions you would advise someone with Parkinson's to ask their clinician after diagnosis?

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* 11. Do you have a favourite quotation about how to make the most out of life, if so, what is it?

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* 12. What is the single most important message you would like to send to the Parkinson's community?

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* 13. If you would like to receive an email from us with the results of this survey, please provide your email details here.