Questions are for people with PSC and people who have had a transplant for PSC.

Primary sclerosing cholangitis (PSC) occurs, most often, in individuals with inflammatory bowel disease (IBD). Recent studies indicate that the combination of PSC and IBD arises because of an imbalance between the good vs. bad bacteria in the gut.

In the following questions, FMT stands for faecal microbiota transplantation. This is where your own gut bacteria are replaced with that from a healthy individual.

Question Title

* 1. With this in mind, would you be interested in taking part in a study that:

  Yes No
uses vancomycin (a gut-specific antibiotic) with the aim of treating your PSC and IBD?
uses FMT?
uses BOTH a gut-specific antibiotic and FMT?

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* 2. Would you be willing to receive FMT by:

  Yes No
by nasogastric tube (tube passing from your nose to the stomach)?
during your routine colonoscopy?
by enema?

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* 3. Which of the following study designs would you prefer?

We are holding an online video discussion from 6:30pm to 7:30pm on Tuesday 17th September to discuss what people with PSC think about a study involving FMT and vancomycin. If you are able to get online at that time, and would like to join us to talk a bit more about this, please add your email address below. We will use your email to contact you with details of how to join. *Our video discussion has taken place. If you would like to be contacted to be involved in future discussions, please add your email address. Thank you!*

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* 4. If you'd like to join the discussion, please enter your email address:

Thank you very much for taking the time to give your views. Now click 'Done' to submit your answers.
Privacy Notice
The information in this survey is being collected by PSC Support on behalf of Dr Palak Trivedi (Queen Elizabeth Hospital Birmingham). It consists entirely of answers to multiple-choice questions, none of which contain personally identifiable data. We will share the survey results (excluding email addresses if provided) with Dr Trivedi. The anonymised results will be published on our website and through our email bulletins and social medial channels.

Individuals can optionally provide their email address if they wish to join the online discussion. We will only use your email address for the purposes of informing you about the discussion and your email address will not be passed to researchers/healthcare professionals or anyone else outside of PSC Support. You can ask us to remove your email address by contacting us at privacy@pscsupport.org.uk.

For more information about how PSC Support looks after your data, please see our Privacy Policy.

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