Take part in our national survey

Introduction

The Professional Record Standards Body (PRSB) is conducting this survey to help define a core set of information about a person that needs to be shared to support safe, high quality joined-up care and help people take greater control of their health and care.

Making sure that the right information is available whenever and wherever it is needed for care means information needs to be recorded in a standardised way. Standards enable digital systems to share information without losing or changing its meaning. Not all information will be used all the time and a professional's access will be determined by their role and need. PRSB has produced a model, a description of what core information contains, and a set of FAQs to answer your questions about this and other related issues.

PRSB has been commissioned by NHS England to define a core information standard for local health and care records, which will be piloted before roll-out across the UK.

The draft standard in this survey has been developed following consultation with patients, carers and other citizens, health and care professionals and industry representatives. We would therefore be grateful if you could complete the survey and circulate widely among your networks.

Completing the survey
It should take you approximately 15 minutes to answer the questions. The closing date for responding is 30 April 2019.
 
What happens next?
Following the consultation, responses will be analysed to create a final draft standard which will be assured by the PRSB and then shared with patient groups, health and care professional bodies and others to gain their support and endorsement prior to publication. Should you have any questions, please contact info@theprsb.org.


Thank you for your time and interest in helping us with this project.
Start the survey

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1. Please tell us which of the following best matches your role. Please tick the appropriate job description and add more detail in the box provided below about your specific role.

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2. Please describe the setting in which you work.

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3. Do you agree that sharing core information will bring these benefits?

  Strongly agree Agree Neither agree or disagree Disagree Strongly disagree
Improve the quality and safety of care
Make care more efficient
Lead to better integration between health and care services
Support people who access services to take more control and manage their own care
Support better care planning and research

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4. What concerns do you have about sharing core information?

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5. Which of the following benefits would people who use services get from contributing to the information held in their health and care records? For example recording their needs, values and preferences or measurements they have taken such as blood pressure.

  Strongly agree Agree Neither agree or disagree Disagree Strongly disagree
Improve communication including the timeliness of information sharing e.g. sharing test results
Promote people managing their own care
Support making joint decisions with professionals about their care
Improve efficiency e.g. avoid repeating information
Reduce burden on professionals
Improve safety

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6. Can you see any issues arising as a result of people who use services contributing to and sharing their information?

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7. Sections of the core information standard

Here is a summary of the key information included in the core information standard (the full details can be found in an interactive model here). 

Please rate how important this information is to you. Think about what information it would be helpful to know that you can’t currently access.

  Strongly agree Agree Neither agree nor disagree Disagree Strongly disagree
About me
Important information about the person and their needs and preferences.
Demographics and contacts
The person’s demographic and contact details.
Legal Information
Legal information relating to the person e.g. lasting power of attorney, consent
Social context
E.g. household and lifestyle factors.
Family history
Relevant illness in family, e.g. genetic information.
Relevant past history
The significant medical, surgical and mental health history.
Pregnancy status
Pregnancy status and due date.
Safeguarding and risks
Details of concerns, risks or issues e.g. presence of child protection plan.
Medications and allergies
Medications, known allergies and adverse reactions.
Investigations, examinations and assessments
Test requests and results.
Problems, diagnoses, conditions and procedures
Summary of the problems, diagnoses (or symptoms) and procedures.
Plan and requested actions
For professionals and the person, including investigations and treatments.
Vaccinations
Record of vaccinations.
Developmental skills
Children’s developmental skills, for example, walks independently.
Participation in research
The research study/trial and or drug/intervention.
Alerts
Highly visible note on for example metallic implants or MRSA.
Correspondence
Between professionals and/or with the person.

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8. What, if anything, is missing from the list above?

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9. About me
‘About me’ section for the person using services. This section is a record of the things that an individual feels it is important to communicate about their needs, strengths, values and preferences to others providing support and care. This table shows the information captured in this section.



Should "About me' be prioritised as part of the core information for everyone involved in health and care?

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10. Alerts
This section is for any significant information meriting a specific and highly visible warning to any user (e.g. metallic implant, emergency keyholder information, potential dangerous pet).



Should alerts (e.g. metallic implant, dangerous dogs) be flagged as part of the core information set?

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11. Assessments
This section is for documenting assessment scales such as mental health assessment scales, New York Heart Failure, Activities of Daily Living (ADL).



Should assessment summaries (which include written assessment outcomes for social care and mental health) be included in the core information set?

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12. Risks
Details of any risk a person poses to self, others or from others.

This subsection is called risks.  Does 'risks' describe this section well and is this what you would expect to see in it?

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13. Relevant past medical, surgical and mental health history
The record of the person’s significant medical, surgical and mental health history. Including relevant previous diagnoses, problems and issues, procedures, investigations, specific anaesthesia issues, etc (with obstetric history).

Looking at the information below, is this all the information you need to share as part of the core information set about an individual's past pregnancy history?

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14. Pregnancy status
The pregnancy state relating to women.

Should current pregnancy status be part of the core information set?

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15. Correspondence
This is a section where any correspondence relating to the person can be stored.

Should the core information set include correspondence such as outpatient letters or letters from patients?

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16. Safeguarding
The following table of information is taken from the safeguarding and risks section of the core information standard.



Should the core information set include details of historic (now closed) child protection plans? (A child protection plan acts to keep a child safe from abuse and neglect.)

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17. Should disability be included as a separate section in the core information set? (Mobility, cognitive and accessibility disabilities are currently recorded in individual requirements)

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18. End of life
This is the 'End of life' section in the draft core information standard. Please read through the contents and answer the question below.



Is this all the information needed for end of life care as part of the core information set?

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19. Do you have any other comments you would like to add before submitting the survey?

Many thanks for your valued input.
It you would like to receive the results of the survey, please let us know by emailing info@theprsb.org. 
 

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