Exploring areas of research

My name is Lianne Kearsley-Fleet and I am a researcher at The University of Manchester.

I have previously looked at which biologic therapies children and young people with JIA use in the UK, and how well the drugs work. I am now starting to think about my own research path and am particularly interested in looking at those children and young people who are now young adults, where there is currently limited information available.

I would like to present below some areas I am thinking of researching and would value your feedback as to whether it is an area of interest to you as adolescents and young adults with rheumatic diseases.

Don't forget to add your name and contact details at the end of this survey so that we can send you your voucher for participating. 

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* 1. Do you have juvenile idiopathic arthritis (JIA)?

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* 3. Do you think there is a need for research in young adults with JIA beyond the childhood research that has already been done?

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* 4. Which of the following areas of research would be most important to you?

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Disease activity (i.e. arthritis / joint count)
Functional ability (i.e. moving around the house, getting ready, chores, walking, activities of daily living)
Pain
Fatigue
Quality of life (i.e. general health, limitations of activity, socialising)
Mental health (i.e. positive outlook, support in managing a long-term condition)
Education / occupational status (i.e. level of education, ease of being in work)
Serious adverse events (e.g. infections)
Adverse drug reactions (i.e. health events you feel are related to the drug you are taking)
Fertility / sexual health / pregnancy outcomes / parenthood (both male and female)
Issues around transfer of care / experiences between different teams (paediatrics versus adults, or various specialities) 
Other ares of interest (please specify)

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* 5. Is there anything else you would like me to investigate? What do you think we should be focusing on answering through our research?

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* 6. If you would like to receive a voucher as a thank you for your participation in this survey, please enter your name and email address below.

Thank you for taking the time to complete this questionnaire. Your feedback is hugely helpful to me. If you would like any further information please email me at: lianne.kearsley-fleet@manchester.ac.uk
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