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1. Welcome

Thank you for helping The British Pain Society’s Patient Voice Committee (TPVC) with our 2022 Survey. The Patient Voice Committee's role is to champion the patient and carer voice in national conversations both within The British Pain Society and with external partners. We also aim to raise awareness of pain and the impact it has on patients and carers.

This survey is for people living with pain aged 16 years and over. In this survey, we want to know more about your experiences and opinions of accessing a pain clinic, self-management and how you cope with your daily pain. We would also value your thoughts on the idea of community pain professionals. The following provides more information about the Survey and what to expect.

What is The Patient Voice Committee?
The TPVC is a part of The British Pain Society. We are a small group of people who are affected by chronic pain, as well as some healthcare professionals.

The TPVC aims to be the voice of you, the patients, and caregivers on issues of pain. We have a direct line to advise the Council at The British Pain Society of the views of patients and caregivers, to improve patient information within the Society, ensure that the patient voice is heard and to encourage patients and caregivers to become better informed about pain and pain management.
 
Why is your opinion important to us and how you can help?
To ensure patients and families’ voices are heard, we need to know more about your views and opinions. By completing the Survey, we can understand more about both your and other people’s route to diagnosis, the different ways people manage their own pain and what you would like to see from the TPVC. This will enable us to set our priorities for the year ahead and help shape pain services in the UK.
 
How long will it take to complete the survey?
Most people find the Survey takes 15-20 minutes to complete. It is unfortunately not possible to save your progress mid-survey and return later. However, if you wish to take a break, please leave your browser or smartphone open on your current page and you can continue afterwards.
 
What will you do with the responses you receive from the Survey?
We will analyse your responses anonymously, alongside the responses provided by other participants taking part in the Survey. It is important to us that health professionals and other people in pain can learn from the results of this survey. A report will be produced and shared on our website and via social media. We may also seek to publish the results in professional publications (like Pain News, which is available to members of the British Pain Society), the Conversation and other journalistic media and peer reviewed journals.
 
The overall results may be shared with other organisations or used to help us in any future research studies that The British Pain Society including TPVC may conduct. We may highlight some quotes but will ensure there is no information that could identify you. By using this approach, we will ensure the issues that are of importance to people living with chronic pain, their families and friends are heard by the NHS and UK Government.
 
Why are you asking for my demographic information?
Pain affects all ages, all genders, all races, and cultures however we know that some parts of the country find it more difficult to access services. Building a picture of our respondents will help us better understand current challenges.
 
Can I withdraw at any time?
Yes, you are free to withdraw from the Survey at any time.
 

What if I have further questions or want to know more about the Survey before I begin?
To make sure we are inclusive and accessible to all, please let us know if you require any adjustments in format or assistance with the completion of the survey.

If you need any help with this Survey or would like to ask any questions before completing it, then please get in touch via email at info@britishpainsociety.org or contact us on Twitter using our Twitter handle @PatientBps or @BritishPainSoc.

To move forward through the Survey, please click on the Next button at the bottom of the page.

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