At the bottom of this introduction, there is a jargon buster. Words explained there look like this.

An introduction:
The government want to know how we think long term health and social care should be paid for in the future. Before we get going with the questions, let’s think about how things are paid for now. In a nutshell, people pay tax to the Government and to their local authority.  Some of this money pays for health and social care

You pay tax!
If you think you’re not a tax payer, you're wrong!  Everyone will have bought something which has VAT on it.  If you have bought adult clothes, or a bar of chocolate, chances are you will have paid VAT!  

What is the difference between health and social care? 
Social care supports people with everyday living.  Health means medical care.  There’s a little more about this in the word list. 

Because there’s not enough money to give everybody the social care they want, local authorities use the eligibility criteria to decide who gets what. 

Who sorts out health and social care? 
At the moment, the Government gives money to different groups of people to sort out and pay for health and social careLocal authorities sort out most social care.  Trusts and clinical commissioning groups sort out health.  Don’t worry too much about the different names, but it is good to know that health and social care are sorted out and paid for by different groups.
 
How will we use what you tell us? 
We will tell the government what everyone thinks.  We may also use the information to write reports or help with our campaigning. 
 
Do I have to give my name?
No, you don't have to give your name! If you do, we may contact you to find out more about what you think, but we won't tell the Government who said, what.  

You don't have to answer every question!
Everyone will know about different things and have had different experiences.  This isn't an exam - please move on if you don't know how to answer a question or don't have anything to say!

Question Title

* 1. Word List - What do we mean by:

Social care:  This is care and support with every day life – things like help with getting washed and dressed, going out and about, and help with budgeting.  The Care Act 2014 tells you a lot about social care.  You can find out a lot more about it here

Health care: This is to do with medical things, including Drs and nurses, hospitals and support with health conditions.

Local Authority: These may also be called councils.  The Local Authority usually arrange services for the people who live in their area.

Public services: These are the services people use.  They include rubbish collection, social services, libraries and leisure centres and roads.

Trusts: In health, there are different kinds of trusts and they run different services - like hospitals, ambulance services.

Tax: Tax is a payment to the Government or Local Authority her are some common taxes:

       Income tax - This is usually paid because people have a wage 
       Council tax - This is paid to the Local Authority and the amount due is decided on the value of the place you live and how many people live there
       VAT - Value added tax goes to the Government, and is paid on goods and services

Eligibility criteria   This is a way of deciding how much social care a person needs.  You can find out more about eligibility criteria here

Green paper: This is a report written by the Government.  The aim is to get people thinking and talking about the subject.

LET'S GET GOING!

If you would be happy for us to contact you to find out more about what you think, please tell us your name :

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* 2. What do you think is good about the way social care is paid for now? 

You might want to think about things like:
  • Fairness - eligibility criteria
  • Free for many people
  • Pre-payment cards
  • Everyone pays what they can afford through tax
  • Personal budgets , employing own staff
  • You don't have to have personal budget
  • Support is well planned
  • Commissioning and tenders
  • Something completely different!

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* 3. What do you think is bad about the way social care is paid for now?

You might want to think about things like:

  • Having to meet the eligibility criteria
  • Not enough money to go round
  • People having to pay a top up
  • People having to pay for support
  • Choice or lack of choice
  • The rules about the types of support available
  • Pre-payment cards
  • Personal budgets, employing own staff
  • Something completely different!
  • Bureaucracy - lots of hard paperwork
  • Commissioning and tenders 
  • Something completely different!

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* 4.
  • What do you think is good about the way health care is paid for now?
  • You might want to think about things like:

  • Free when you need it
  • Everyone pays what they can afford through tax 
  • Everyone should get the same standard of service
  • Personal health budgets
  • The use of private companies
  • Commissioning  
  • Something completely different!

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* 5. What do you think is bad about the way health care is paid for now?
You might want to think about things like:
  • Not enough money in the system
  • The use of private companies
  • Commissioning 
  • The cost of healthcare rising 
  • 'Postcode lottery' - getting better or worse treatment depending on where you live
  • Something completely different!

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* 6. Do you think it would be better or worse if health and social care money was put together so that there was one budget for everything?
You might want to think about things like:
  • Whether things would be more joined-up
  • Whether health would 'swallow up' social care
  • Whether it would be easier to use one big system, or harder
  • Whether money would be saved or wasted
  • Something completely different! 

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* 7. How can we make sure that the needs of people with learning disabilities don't get forgotten?
You might want to think about things like:
  • Advocacy
  • How patient groups might work
  • Pervious experience - when it worked and people with learning disabilities were heard, when it didn't work so well
  • How the Autism Act has worked in health and social care - what can we learn?
  • Something completely different!

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* 8. There is a green paper about social care on the way, but this is only about older people.   The government is promising to look at support for people with learning disabilities in a separate report.  Do you think it is right that the needs of older people and people with learning disabilities are kept separate?

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* 9. How do we make sure that people with learning disabilities have their needs met  in older life?

You might want to think about things like:
  • How services for older people like dementia, occupational therapy and home care should work together with learning disability services
  • Should older peoples' services or learning disability services take the lead?
  • Does what happens now work?
  • How should we keep the good things and change the bad things?
  • What can we learn from transition services for young people?
  • Something completely different

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* 10. Do you think money is being wasted at the moment in the health and social care systems?
Please use your experience and the things you know about to answer this question. 

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* 11. If you have a problem with your health or support needs, do you know where to go?

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* 12. Please tell us what you think about the following things:

  Don't know Very bad Quite bad Okay Quite good Very good
Personal Budgets
Personal Health Budgets
Pre-payment cards
Self funding (paying for your own support)
Universal Credit
Personal Independence Payments 

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* 13. Which out of the above ways of receiving or spending money for support is the best?

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* 14. Which out of the above ways of receiving or spending money for support is the worst?

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* 15. Do you get the health and social care services that you need, when you need them?  

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* 16. In the future, Local Authorities will be able to put up council tax and business tax to help cover the cost of social care.  This might mean that areas which are better off, have more money for services. What do you think about this? 

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* 17. Some other countries spend more on long-term health than the UK.  In some places. people pay more tax to pay for services, in other places, people who can afford medical insurance are encouraged to 'go private'.  Do you think:

  Yes No Keep things the same
We should spend more on health and social care?
We should pay more tax to fund more health and social care? 
People who can afford it should be encouraged to have medical insurance?
We should cut other services to have more for health and social care? 

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* 18. Family members 

Have you ever paid for the following:

  Daily Weekly At least once a month At least once every 3 months Less often Never
Living costs for your loved one due to a mistake at DWP?
Petrol and travel costs for your loved one?
Equipment not provided by health and social care?
Additional support for your loved one?
Furniture or other moving costs for your loved one?
The cost of your (adult) loved one to live at home with you?

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