Prospective study registration and timely disclosure of results are important for ethical, moral, accountability, research integrity and waste reduction perspectives. As a public funder of research involving patients and the public, these are particularly important perspectives to us and our research communities. Much of NIHR research and the researchers that deliver it uphold the highest standards of transparency and do register and publish their results. The NIHR cares about issues relating to research integrity, waste reduction and transparency, and works to improve the quality and impact of research (for example see the NIHR Adding Value in Research framework).
One part of that work has been to sign-up to the World Health Organisation (WHO) Joint statement on public disclosure of results from clinical trials.
In order to deliver on that commitment we are required to develop a policy describing our expectations and practical support for our research communities to comply. To that end a draft policy on prospective trial registration and timely disclosure of Clinical Trial results was released on the 8 August 2018.
PLEASE NOTE THIS SURVEY CLOSES ON 21 SEPTEMBER 2018