Introduction

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12% of survey complete.
Thank you for taking the time and energy to share your views on the draft NICE guideline for M.E./CFS. It is open to anyone with personal experience of M.E., including carers, as well as professionals and those with any general interest.

It may be that you are answering on behalf of someone severely affected, or unable to use screens. If you or the person you are supporting would prefer a paper copy, please get in touch (see below)

Action for M.E. will use what you tell us to develop a detailed response to NICE, to ensure that your experience of living with the condition influences the final finished guideline, due to be published in April 2021.

We don't ask questions about every section of the guideline, as we didn't want the survey to be too long. If there's something we haven't covered here that you think is important, please get in touch (see below).

Because this survey is for people of all ages, we have tried to make the language we use as simple as possible. If something isn't clear, please do let us know. Page references for the draft NICE guideline are included throughout.

Lastly, it's fine to skip questions if you need to - everything you share with us is valuable. 

The deadline for completing the survey is Monday 14 December 2020. 

For enquiries about anything relating to the survey, please email policy@actionforme.org.uk or call on 0117 927 9551. Thank you.

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