Neuroendocrine Cancer UK (NCUK) Counselling Service Survey NCUK Counselling Service Survey Question Title * 1. What is your age? Teen 20-29 30-39 40-49 50-59 Over 60 OK Question Title * 2. Gender? Male Female Trans OK Question Title * 3. Please tell us what kind of NET you have. For example “Small bowel NET with liver metastases". If you don’t know, just write “Don’t know”. OK Question Title * 4. Where in the UK do you live? England Northern Ireland Scotland Wales OK Question Title * 5. How long ago were you diagnosed with your primary condition? Less than a year ago 1-2 years ago 3-5 years ago 6-9 years ago 10 or more years ago OK Question Title * 6. What was your age at the time of your primary diagnosis? OK Question Title * 7. Please let us know if you have ever been diagnosed with any other mental / physical health problems in addition to your primary diagnosis. OK Question Title * 8. When did you first access the NCUK counselling service? 2019 2020 OK Question Title * 9. Did someone recommend counselling to you? No, it was my own idea Yes, my GP (family doctor) Yes, my hospital specialist Yes, family and/or friends Yes, the NPF Helpline Other (please specify) Other (please specify) OK Question Title * 10. What was the name of your counsellor? Kym Winter David Phipps Both OK Question Title * 11. How many NCUK Counselling sessions have you received? 1-4 5-10 More than 10 OK Question Title * 12. Was the number of sessions you had... Too few? Too many? About right? OK Question Title * 13. What were the main issues of concern for you at the time you requested NCUK counselling? Dealing with diagnosis Managing uncertainty Relationships with a partner or other family members Difficulties with healthcare professionals / systems Worries about children Concerns about having children Anxiety and/or worry Depression, low mood and/or tearfulness Mood swings Sleep problems Problems at work Financial worries Worries about the future Dealing with the treatment / treatment options Talking to others about your condition Bereavement / loss (including of employment, familiar routines, health etc) Loneliness Suicidal thoughts / feelings Other (please specify) OK Question Title * 14. How helpful was the NCUK counselling you received? Very helpful Quite helpful Somewhat helpful Not helpful OK Question Title * 15. How well did you feel your counsellor understood your particular condition? Very well Quite well Not well at all OK Question Title * 16. How well did you feel your counsellor understood your difficulties? Very well Quite well Not well at all OK Question Title * 17. How helpful / important to you was it that your counsellor have an awareness of your condition? Very helpful / important Quite helpful / important Not helpful / important OK Question Title * 18. When you chose the NCUK Counselling Service, what was your decision to do so based upon? (Please tick all that apply) Specialist counselling service for people with your condition Recommedation / referral Preference for telephone counselling Lack of face-to-face counselling in your area Preference to use a service separate from your healthcare professionals / team The service being free Speed of access Other (please specify) OK Question Title * 19. Have you ever been offered counselling / psychological support via your GP (family doctor) or your hospital as part of living with your condition? Yes No OK Question Title * 20. If you answered ‘Yes’ did you take up this offer? Yes No OK Question Title * 21. If you answered 'No' to question 20, please say a little more about your decision here and what stopped you from taking it up, or not carrying on with sessions, e.g. compatibility with your counsellor, the cost, the distance oravailability of service. OK Question Title * 22. If you have any recommendations for, or any other comments on, the NCUK Counselling Service, please do let us know here. OK Question Title * 23. Please use the space below to let us know if you have any other comments. OK THANK YOU VERY MUCH. YOU HAVE FINISHED THE SURVEY.