What is this study about?
We are currently working on a study to explore the quality of care received by children and young people on long-term ventilation (LTV) aged 0-24 years. We will produce a report for doctors, nurses, and other professionals about how to improve the care they deliver and guidance for patients and families on what care you should expect to receive.

Information is being collected across the whole of the UK, and as part of this project we are asking patients and parent carers for your views, because it’s you who really know how services could be improved to help you and other people receiving LTV.

Who should complete this survey?
Please complete this survey if you are the child or young person OR the parent carer of a child or young person who is receiving or who has received long-term ventilation. If you are a parent carer you may also wish to help the child or young person to complete the questionnaire as well as completing one yourself.

ALL RESPONSES GIVEN AS PART OF THIS SURVEY ARE CONFIDENTIAL
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11% of survey complete.

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