Children and Young People with Headache or Migraine Survey 2018 - UK Headache Network

Children and Young People with Headache or Migraine Survey 2018

At the Migraine Trust we think it’s important that everybody understands what life is really like when you have migraine or headache. In particular we think that if all teachers, doctors and politicians knew what it was really like they would be better able to help when its needed.

We are collecting the stories of young people in the UK who have headache and migraine so that we can make this happen.

Can you help us by filling out this short survey?

You don’t have to fill in every question but anything you want to share with us will be very helpful and anonymous. The overall results of the survey will be used publicly.

If you need help answering the questions, please ask an adult to fill this out with you. If your parents/carer have any questions about the survey, they can contact us at policy@migrainetrust.org

Thank you for your help!

Question Title

* 1. Where in the UK do you live?

Greater London

South East England

South West England

East of England

East Midlands

West Midlands

Yorkshire and the Humber

North East England

North West England

Northern Ireland

Scotland

Wales

Channel Islands or the Isle of Man (Crown Dependencies)

Question Title

* 2. How old are you?

5 - 11 years old

11-16 years old

16 years old +

Question Title

* 3. What is your gender?

Male

Female

Prefer not to say

Prefer to be described as

Question Title

* 4. What headache condition do you live with?

Migraine

Tension type headache

Other (please specify)

Question Title

* 5. How does headache or migraine affect you? Please tick all that apply

	Always	Very Often	Sometimes	Not very often	Never
Being sick	Being sick Always	Being sick Very Often	Being sick Sometimes	Being sick Not very often	Being sick Never
Headache	Headache Always	Headache Very Often	Headache Sometimes	Headache Not very often	Headache Never
Feeling down	Feeling down Always	Feeling down Very Often	Feeling down Sometimes	Feeling down Not very often	Feeling down Never
Poor focus and concentration	Poor focus and concentration Always	Poor focus and concentration Very Often	Poor focus and concentration Sometimes	Poor focus and concentration Not very often	Poor focus and concentration Never
Tiredness	Tiredness Always	Tiredness Very Often	Tiredness Sometimes	Tiredness Not very often	Tiredness Never
Stomach cramps	Stomach cramps Always	Stomach cramps Very Often	Stomach cramps Sometimes	Stomach cramps Not very often	Stomach cramps Never
Sensitive to light	Sensitive to light Always	Sensitive to light Very Often	Sensitive to light Sometimes	Sensitive to light Not very often	Sensitive to light Never
Sensitive to noise	Sensitive to noise Always	Sensitive to noise Very Often	Sensitive to noise Sometimes	Sensitive to noise Not very often	Sensitive to noise Never
Sensitive to smell	Sensitive to smell Always	Sensitive to smell Very Often	Sensitive to smell Sometimes	Sensitive to smell Not very often	Sensitive to smell Never
Dizziness	Dizziness Always	Dizziness Very Often	Dizziness Sometimes	Dizziness Not very often	Dizziness Never

Other (please specify)

Question Title

* 6. How does headache or migraine affect your daily life? Please tick all that apply

	Always	Very Often	Sometimes	Rarely	Never
Being with my friends	Being with my friends Always	Being with my friends Very Often	Being with my friends Sometimes	Being with my friends Rarely	Being with my friends Never
Doing exercise	Doing exercise Always	Doing exercise Very Often	Doing exercise Sometimes	Doing exercise Rarely	Doing exercise Never
Playing sports	Playing sports Always	Playing sports Very Often	Playing sports Sometimes	Playing sports Rarely	Playing sports Never
What I can eat	What I can eat Always	What I can eat Very Often	What I can eat Sometimes	What I can eat Rarely	What I can eat Never
Relationships	Relationships Always	Relationships Very Often	Relationships Sometimes	Relationships Rarely	Relationships Never
Relationships with my family	Relationships with my family Always	Relationships with my family Very Often	Relationships with my family Sometimes	Relationships with my family Rarely	Relationships with my family Never
My confidence	My confidence Always	My confidence Very Often	My confidence Sometimes	My confidence Rarely	My confidence Never
How I feel about myself	How I feel about myself Always	How I feel about myself Very Often	How I feel about myself Sometimes	How I feel about myself Rarely	How I feel about myself Never
It doesn't affect my daily life	It doesn't affect my daily life Always	It doesn't affect my daily life Very Often	It doesn't affect my daily life Sometimes	It doesn't affect my daily life Rarely	It doesn't affect my daily life Never

Other (please specify)

Question Title

* 7. How does headache or migraine affect your school life? Please tick all that apply

	Always	Often	Sometimes	Rarely	Never
I miss out on school	I miss out on school Always	I miss out on school Often	I miss out on school Sometimes	I miss out on school Rarely	I miss out on school Never
I find it hard to focus and learn new things	I find it hard to focus and learn new things Always	I find it hard to focus and learn new things Often	I find it hard to focus and learn new things Sometimes	I find it hard to focus and learn new things Rarely	I find it hard to focus and learn new things Never
I worry about sitting exams if I am having a headache or migraine	I worry about sitting exams if I am having a headache or migraine Always	I worry about sitting exams if I am having a headache or migraine Often	I worry about sitting exams if I am having a headache or migraine Sometimes	I worry about sitting exams if I am having a headache or migraine Rarely	I worry about sitting exams if I am having a headache or migraine Never
I find it difficult to make new friends as they don't understand about my headache or migraine	I find it difficult to make new friends as they don't understand about my headache or migraine Always	I find it difficult to make new friends as they don't understand about my headache or migraine Often	I find it difficult to make new friends as they don't understand about my headache or migraine Sometimes	I find it difficult to make new friends as they don't understand about my headache or migraine Rarely	I find it difficult to make new friends as they don't understand about my headache or migraine Never
I find it difficult to make friends as I miss so much school	I find it difficult to make friends as I miss so much school Always	I find it difficult to make friends as I miss so much school Often	I find it difficult to make friends as I miss so much school Sometimes	I find it difficult to make friends as I miss so much school Rarely	I find it difficult to make friends as I miss so much school Never
I am not able to spend as much time with my friends because of my headache and migraine	I am not able to spend as much time with my friends because of my headache and migraine Always	I am not able to spend as much time with my friends because of my headache and migraine Often	I am not able to spend as much time with my friends because of my headache and migraine Sometimes	I am not able to spend as much time with my friends because of my headache and migraine Rarely	I am not able to spend as much time with my friends because of my headache and migraine Never
I am not able to go to after school clubs and events	I am not able to go to after school clubs and events Always	I am not able to go to after school clubs and events Often	I am not able to go to after school clubs and events Sometimes	I am not able to go to after school clubs and events Rarely	I am not able to go to after school clubs and events Never
I catch up on school work at home	I catch up on school work at home Always	I catch up on school work at home Often	I catch up on school work at home Sometimes	I catch up on school work at home Rarely	I catch up on school work at home Never
My parents/carers have to take time off work to look after me when I am unwell with headache or migraine	My parents/carers have to take time off work to look after me when I am unwell with headache or migraine Always	My parents/carers have to take time off work to look after me when I am unwell with headache or migraine Often	My parents/carers have to take time off work to look after me when I am unwell with headache or migraine Sometimes	My parents/carers have to take time off work to look after me when I am unwell with headache or migraine Rarely	My parents/carers have to take time off work to look after me when I am unwell with headache or migraine Never
I find it hard to join sports and exercise clubs	I find it hard to join sports and exercise clubs Always	I find it hard to join sports and exercise clubs Often	I find it hard to join sports and exercise clubs Sometimes	I find it hard to join sports and exercise clubs Rarely	I find it hard to join sports and exercise clubs Never
It doesn't affect my school life	It doesn't affect my school life Always	It doesn't affect my school life Often	It doesn't affect my school life Sometimes	It doesn't affect my school life Rarely	It doesn't affect my school life Never

Other (please specify)

Question Title

* 8. What do you find helpful?

	Very helpful	Helpful	Sometimes helpful	Unhelpful	Not helpful at all
Having information so I am able to look after myself	Having information so I am able to look after myself Very helpful	Having information so I am able to look after myself Helpful	Having information so I am able to look after myself Sometimes helpful	Having information so I am able to look after myself Unhelpful	Having information so I am able to look after myself Not helpful at all
Friends understanding about headache and migraine, so they know how to look after me	Friends understanding about headache and migraine, so they know how to look after me Very helpful	Friends understanding about headache and migraine, so they know how to look after me Helpful	Friends understanding about headache and migraine, so they know how to look after me Sometimes helpful	Friends understanding about headache and migraine, so they know how to look after me Unhelpful	Friends understanding about headache and migraine, so they know how to look after me Not helpful at all
Family understanding about headache and migraine, so they know how to look after me	Family understanding about headache and migraine, so they know how to look after me Very helpful	Family understanding about headache and migraine, so they know how to look after me Helpful	Family understanding about headache and migraine, so they know how to look after me Sometimes helpful	Family understanding about headache and migraine, so they know how to look after me Unhelpful	Family understanding about headache and migraine, so they know how to look after me Not helpful at all
Teachers know what to do and what I need if I have a headache or migraine at school	Teachers know what to do and what I need if I have a headache or migraine at school Very helpful	Teachers know what to do and what I need if I have a headache or migraine at school Helpful	Teachers know what to do and what I need if I have a headache or migraine at school Sometimes helpful	Teachers know what to do and what I need if I have a headache or migraine at school Unhelpful	Teachers know what to do and what I need if I have a headache or migraine at school Not helpful at all
Talking to a nurse	Talking to a nurse Very helpful	Talking to a nurse Helpful	Talking to a nurse Sometimes helpful	Talking to a nurse Unhelpful	Talking to a nurse Not helpful at all
Talking to the doctor	Talking to the doctor Very helpful	Talking to the doctor Helpful	Talking to the doctor Sometimes helpful	Talking to the doctor Unhelpful	Talking to the doctor Not helpful at all
The Migraine Trust website	The Migraine Trust website Very helpful	The Migraine Trust website Helpful	The Migraine Trust website Sometimes helpful	The Migraine Trust website Unhelpful	The Migraine Trust website Not helpful at all
Taking medicine for my medication	Taking medicine for my medication Very helpful	Taking medicine for my medication Helpful	Taking medicine for my medication Sometimes helpful	Taking medicine for my medication Unhelpful	Taking medicine for my medication Not helpful at all
Talking/messaging other children and young people with headache or migraine on social media	Talking/messaging other children and young people with headache or migraine on social media Very helpful	Talking/messaging other children and young people with headache or migraine on social media Helpful	Talking/messaging other children and young people with headache or migraine on social media Sometimes helpful	Talking/messaging other children and young people with headache or migraine on social media Unhelpful	Talking/messaging other children and young people with headache or migraine on social media Not helpful at all
Information leaflets on headache or migraine	Information leaflets on headache or migraine Very helpful	Information leaflets on headache or migraine Helpful	Information leaflets on headache or migraine Sometimes helpful	Information leaflets on headache or migraine Unhelpful	Information leaflets on headache or migraine Not helpful at all
Talking about how migraine affect my mood with a healthcare professional	Talking about how migraine affect my mood with a healthcare professional Very helpful	Talking about how migraine affect my mood with a healthcare professional Helpful	Talking about how migraine affect my mood with a healthcare professional Sometimes helpful	Talking about how migraine affect my mood with a healthcare professional Unhelpful	Talking about how migraine affect my mood with a healthcare professional Not helpful at all
Having a healthcare professional I can contact anytime I need advice and support	Having a healthcare professional I can contact anytime I need advice and support Very helpful	Having a healthcare professional I can contact anytime I need advice and support Helpful	Having a healthcare professional I can contact anytime I need advice and support Sometimes helpful	Having a healthcare professional I can contact anytime I need advice and support Unhelpful	Having a healthcare professional I can contact anytime I need advice and support Not helpful at all

Other (please specify)

Question Title

* 9. In your own words please tell us what it is like to live with headache or migraine

Thank you for taking the time to answer these questions. Your answers will help us to better understand the support and needs children and young people with headache or migraine.

For more information about The Migraine Trust or to contact us, please visit our website - www.migrainetrust.org

The Migraine Trust is a registered charity in England and Wales (no 1081300) and Scotland (SCO42911).