Participant Information Page

You are being invited to take part in a research study. The research has been reviewed and received ethical approval from the Department of Psychology Research Ethics Committee at Swansea University.

Before you decide whether you would like to participate, it is important for you to understand why the research is being conducted and what it would involve. Please take time to read the following information carefully.

What is the purpose of the study?
The purpose of the research is to revise and revalidate an observational assessment tool known as the St Andrews-Swansea Neurobehavioural Outcome Scale (SASNOS), which is commonly used to determine the presence and severity of neurobehavioural disability after brain injury. To allow the interpretation and evaluation of SASNOS scores in individuals who have experienced brain injury, data from a neurologically healthy sample is needed. Neurologically healthy control data will also allow us to examine the reliability, validity, and clinical utility of the assessment tool.

What will happen to me if I take part?
If you agree to take part, you will be asked to choose a person that you know well and have known for at least 6 months (e.g., a partner, friend, or relative) and to rate this person on the observational assessment tool. There are 79 items in the tool, and each item is rated using a 7-point Likert type scale. You will be asked to rate the person on each of item over the past two weeks, where ‘1’ corresponds to “never” and ‘7’ to “always”. For example, 'Has difficulty finding the right words in conversation'. You will also be asked to provide some standard demographic information, such as your date of birth, gender, and occupation. The research will take approximately 15-20 minutes to complete.

What are the possible advantages and disadvantages of taking part?
There are no possible risks or disadvantages associated with taking part in this research. Whilst there may be no benefits to you personally, the information obtained from this research may provide benefits for individuals who experience brain injury.

Who is carrying out the research?
The research is being carried out by Dr Claire Williams and Dr Paula Foscarini-Craggs, Department of Psychology, Swansea University.

What will happen to the information I provide?
-All data obtained will be kept confidential. You will be identified via a participation number, not by name.
- Your data may be shared with other researchers or made publicly available within an open database. In such circumstances, reasonable effort will be made to remove your identification from the data, and each participant will be assigned a participation number to ensure confidentiality.
- The results of the research will form part of a report at the end of the study, and may be presented to interested parties and published in scientific journals and related media. Please be assured that the data presented in any outputs will be anonymous.
- By request, you can be informed of the general results of the study when it has been completed.

What if I have other questions?
If you have further questions about this research, or wish to discuss anything covered on this information page, please do not hesitate to contact us:

Dr Claire Williams
Department of Psychology
Swansea University
Claire.Williams@swansea.ac.uk

Dr Paula Foscarini-Craggs
Department of Psychology
Swansea University
P.Foscarini-Craggs@swansea.ac.uk

Thank you for taking the time to read this Information Page. If you are interested in taking part, please click on 'next'

T