Questionnaire

My name is Emily Harris; I am currently studying an Access course; Health and Health sciences. Part of the criteria that I have to meet, is an independent project where I have chosen to look into 22q.11.2 deletion syndrome (Di George syndrome). I am focusing on the impact on the parents who have a child with this condition, and will be exploring the challenges they have to face daily.

I would appreciate your feedback on this topic by completing the questions below. This questionnaire is strictly confidential and will only be seen by myself and my course tutors.Throughout this research process you will be able to withdraw yourself at any time.

 

* 1. Are you a parent of a child who has a diagnosis of 22q.11.2 deletion syndrome (Di George Syndrome)?

* 2. What medical complications does your child have due to being diagnosed with this condition?

* 3. Do you receive any form of help from healthcare providers?

* 4. Does your child have respite care?

* 5. What medical equipment does your child need on a daily basis?

* 6. Over the last year how many days has your child spent in hospital?

* 7. How stressed do you feel since your child was diagnosed?

* 8. Do you have any other children?

* 9. How often do you spend time with friends?

* 10. How many people live in the family home and what is their relation to the child?

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