Cumbria Parent Carer Forum Annual Survey 2019

Questionnaire for Parents and Carers of Children with Special Needs and Disabilities in Cumbria
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Dear Parents and Carers,

The Cumbria Parent Carer Forum is looking for feedback from parents and carers about their experiences with the provision in Cumbria for their Children and young people who have special educational needs and disabilities. This survey will be open until Friday 17th May. Many thanks.

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* 1. Where in Cumbria do you live?

Barrow

South Lakes

Allerdale

Copeland

Carlisle

Eden

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* 2. How many children with special educational needs and disabilities do you have?

One

Two

Three

Four

Five

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* 3. Is your child/children: (you can tick more than one box)

Male

Female

Transgender

Prefer not to say

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* 4. What is the age of your child/children? (You can tick more than one box)

0-4

5-11

12-15

16-19

20-25

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* 5. What is the primary diagnosis for your child or young person? - please tick one per child

Autism Spectrum Condition

Deaf Hearing Impaired

Down Syndrome

Moderate Learning Difficulties

Multi-Sensory Impairment

Physical Disability

Physical and Medical Difficulties

Profound and Multiple Learning Difficulties

Severe Learning Difficulties

Social, Emotional and Mental Health

Specific Learning Difficulties

Speech, Language and Communication Needs

Visual Impairment

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* 6. What sort of education does your child/children receive?

Nursery and Preschool

Mainstream Primary

Mainstream Secondary

Special School

Out of County School

Further Education

Dual Placement Primary

Dual Placement Secondary

Alternative provision

Homeschool

Out of county Further Education

Out of school and not receiving education

Other (please specify)

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* 7. How satisfied that your child/young person's needs have been identified by:

	Very satisfied	Satisfied	Dissatsfied	Very dissatisfied	No opinion	Not applicable
Education	Education Very satisfied	Education Satisfied	Education Dissatsfied	Education Very dissatisfied	Education No opinion	Education Not applicable
Health	Health Very satisfied	Health Satisfied	Health Dissatsfied	Health Very dissatisfied	Health No opinion	Health Not applicable
Social Care	Social Care Very satisfied	Social Care Satisfied	Social Care Dissatsfied	Social Care Very dissatisfied	Social Care No opinion	Social Care Not applicable
Transport	Transport Very satisfied	Transport Satisfied	Transport Dissatsfied	Transport Very dissatisfied	Transport No opinion	Transport Not applicable
Transition to adulthood	Transition to adulthood Very satisfied	Transition to adulthood Satisfied	Transition to adulthood Dissatsfied	Transition to adulthood Very dissatisfied	Transition to adulthood No opinion	Transition to adulthood Not applicable

What has gone well and what could be better?

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* 8. How satisfied are you that you were asked about your views and listened to when your child or young person's needs were being identified by:

	Very satisfied	Satisfied	Dissatsfied	Very dissatisfied	No opinion	Not applicable
Education	Education Very satisfied	Education Satisfied	Education Dissatsfied	Education Very dissatisfied	Education No opinion	Education Not applicable
Health: Children's Nursing	Health: Children's Nursing Very satisfied	Health: Children's Nursing Satisfied	Health: Children's Nursing Dissatsfied	Health: Children's Nursing Very dissatisfied	Health: Children's Nursing No opinion	Health: Children's Nursing Not applicable
Health: Therapies	Health: Therapies Very satisfied	Health: Therapies Satisfied	Health: Therapies Dissatsfied	Health: Therapies Very dissatisfied	Health: Therapies No opinion	Health: Therapies Not applicable
Health: CAMHS	Health: CAMHS Very satisfied	Health: CAMHS Satisfied	Health: CAMHS Dissatsfied	Health: CAMHS Very dissatisfied	Health: CAMHS No opinion	Health: CAMHS Not applicable
Social Care	Social Care Very satisfied	Social Care Satisfied	Social Care Dissatsfied	Social Care Very dissatisfied	Social Care No opinion	Social Care Not applicable
Transport	Transport Very satisfied	Transport Satisfied	Transport Dissatsfied	Transport Very dissatisfied	Transport No opinion	Transport Not applicable
Transition to adulthood	Transition to adulthood Very satisfied	Transition to adulthood Satisfied	Transition to adulthood Dissatsfied	Transition to adulthood Very dissatisfied	Transition to adulthood No opinion	Transition to adulthood Not applicable

What has gone well and what could be better?

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* 9. How satisfied are you with the monitoring and assessment of your child's provision, whether through the annual review of the EHC Plan or review of SEN support in school:

	Very satisfied	Satisfied	Dissatsfied	Very dissatisfied	No opinion	Not applicable
Education	Education Very satisfied	Education Satisfied	Education Dissatsfied	Education Very dissatisfied	Education No opinion	Education Not applicable
Health	Health Very satisfied	Health Satisfied	Health Dissatsfied	Health Very dissatisfied	Health No opinion	Health Not applicable
Social Care	Social Care Very satisfied	Social Care Satisfied	Social Care Dissatsfied	Social Care Very dissatisfied	Social Care No opinion	Social Care Not applicable
Transport	Transport Very satisfied	Transport Satisfied	Transport Dissatsfied	Transport Very dissatisfied	Transport No opinion	Transport Not applicable
Transition to adulthood	Transition to adulthood Very satisfied	Transition to adulthood Satisfied	Transition to adulthood Dissatsfied	Transition to adulthood Very dissatisfied	Transition to adulthood No opinion	Transition to adulthood Not applicable

What has gone well and what could be better?

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* 10. Do you fully understand the Annual Review Process?

Yes

What has gone well and what could have been better?

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* 11. Do the professionals involved in the Annual Review Process explain the process and what is happening?

Yes

What has gone well and what could have been better?

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* 12. If your child uses Health Services:

	Very satisified	Satisfied	Dissatisfied	Very dissatisfied	No opinion	Not applicable
Did they receive treatment in a timely way?	Did they receive treatment in a timely way? Very satisified	Did they receive treatment in a timely way? Satisfied	Did they receive treatment in a timely way? Dissatisfied	Did they receive treatment in a timely way? Very dissatisfied	Did they receive treatment in a timely way? No opinion	Did they receive treatment in a timely way? Not applicable
Did it meet your child's needs?	Did it meet your child's needs? Very satisified	Did it meet your child's needs? Satisfied	Did it meet your child's needs? Dissatisfied	Did it meet your child's needs? Very dissatisfied	Did it meet your child's needs? No opinion	Did it meet your child's needs? Not applicable
Did you get empathetic treatment?	Did you get empathetic treatment? Very satisified	Did you get empathetic treatment? Satisfied	Did you get empathetic treatment? Dissatisfied	Did you get empathetic treatment? Very dissatisfied	Did you get empathetic treatment? No opinion	Did you get empathetic treatment? Not applicable
Was it delivered by the right person from the start?	Was it delivered by the right person from the start? Very satisified	Was it delivered by the right person from the start? Satisfied	Was it delivered by the right person from the start? Dissatisfied	Was it delivered by the right person from the start? Very dissatisfied	Was it delivered by the right person from the start? No opinion	Was it delivered by the right person from the start? Not applicable
Did you know how to contact your health professional when the episode of care finished?	Did you know how to contact your health professional when the episode of care finished? Very satisified	Did you know how to contact your health professional when the episode of care finished? Satisfied	Did you know how to contact your health professional when the episode of care finished? Dissatisfied	Did you know how to contact your health professional when the episode of care finished? Very dissatisfied	Did you know how to contact your health professional when the episode of care finished? No opinion	Did you know how to contact your health professional when the episode of care finished? Not applicable

What has gone well and what could have gone better?

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* 13. Did you have to repeat your story many times with the professionals involved in your child's life?

Yes

What has gone well and what could be better?

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* 14. How well do you think your child/young person's needs are met by the following service areas:

	Very satisfied	Satisfied	Dissatsfied	Very dissatisfied	No opinion	Not applicable
Education	Education Very satisfied	Education Satisfied	Education Dissatsfied	Education Very dissatisfied	Education No opinion	Education Not applicable
Health: Children's Nursing	Health: Children's Nursing Very satisfied	Health: Children's Nursing Satisfied	Health: Children's Nursing Dissatsfied	Health: Children's Nursing Very dissatisfied	Health: Children's Nursing No opinion	Health: Children's Nursing Not applicable
Health: Therapies	Health: Therapies Very satisfied	Health: Therapies Satisfied	Health: Therapies Dissatsfied	Health: Therapies Very dissatisfied	Health: Therapies No opinion	Health: Therapies Not applicable
CAMHS	CAMHS Very satisfied	CAMHS Satisfied	CAMHS Dissatsfied	CAMHS Very dissatisfied	CAMHS No opinion	CAMHS Not applicable
Social Care	Social Care Very satisfied	Social Care Satisfied	Social Care Dissatsfied	Social Care Very dissatisfied	Social Care No opinion	Social Care Not applicable
Transport	Transport Very satisfied	Transport Satisfied	Transport Dissatsfied	Transport Very dissatisfied	Transport No opinion	Transport Not applicable
Transition to adulthood	Transition to adulthood Very satisfied	Transition to adulthood Satisfied	Transition to adulthood Dissatsfied	Transition to adulthood Very dissatisfied	Transition to adulthood No opinion	Transition to adulthood Not applicable

What has gone well and what could be better?

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* 15. As a parent or carer, how satisfied are you that you are involved in setting targets/outcomes for your child/young person with:

	Very satisfied	Satisfied	Dissatsfied	Very dissatisfied	No opinion	Not applicable
Education	Education Very satisfied	Education Satisfied	Education Dissatsfied	Education Very dissatisfied	Education No opinion	Education Not applicable
Health: Children's Nursing	Health: Children's Nursing Very satisfied	Health: Children's Nursing Satisfied	Health: Children's Nursing Dissatsfied	Health: Children's Nursing Very dissatisfied	Health: Children's Nursing No opinion	Health: Children's Nursing Not applicable
Health: Therapies	Health: Therapies Very satisfied	Health: Therapies Satisfied	Health: Therapies Dissatsfied	Health: Therapies Very dissatisfied	Health: Therapies No opinion	Health: Therapies Not applicable
CAMHS	CAMHS Very satisfied	CAMHS Satisfied	CAMHS Dissatsfied	CAMHS Very dissatisfied	CAMHS No opinion	CAMHS Not applicable
Social Care	Social Care Very satisfied	Social Care Satisfied	Social Care Dissatsfied	Social Care Very dissatisfied	Social Care No opinion	Social Care Not applicable
Transport	Transport Very satisfied	Transport Satisfied	Transport Dissatsfied	Transport Very dissatisfied	Transport No opinion	Transport Not applicable
Transition to adulthood	Transition to adulthood Very satisfied	Transition to adulthood Satisfied	Transition to adulthood Dissatsfied	Transition to adulthood Very dissatisfied	Transition to adulthood No opinion	Transition to adulthood Not applicable

What has gone well and what could be better?

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* 16. How well do you think services and professionals work together to support your child/young person? Are you:

Very satisfied

Satisfied

Dissatisfied

Very dissatisfied

Not applicable

Please has gone well and what could have been better?

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* 17. How satisfied are you that your child/young person is supported in these areas?

	Satisfied	Very Satisfied	Dissatisfied	Very Dissatisfied	No opinion	Not applicable
Educational Progress	Educational Progress Satisfied	Educational Progress Very Satisfied	Educational Progress Dissatisfied	Educational Progress Very Dissatisfied	Educational Progress No opinion	Educational Progress Not applicable
Taking Part in Community Activities	Taking Part in Community Activities Satisfied	Taking Part in Community Activities Very Satisfied	Taking Part in Community Activities Dissatisfied	Taking Part in Community Activities Very Dissatisfied	Taking Part in Community Activities No opinion	Taking Part in Community Activities Not applicable
Leading a Healthy Life	Leading a Healthy Life Satisfied	Leading a Healthy Life Very Satisfied	Leading a Healthy Life Dissatisfied	Leading a Healthy Life Very Dissatisfied	Leading a Healthy Life No opinion	Leading a Healthy Life Not applicable
Getting Ready for Adulthood	Getting Ready for Adulthood Satisfied	Getting Ready for Adulthood Very Satisfied	Getting Ready for Adulthood Dissatisfied	Getting Ready for Adulthood Very Dissatisfied	Getting Ready for Adulthood No opinion	Getting Ready for Adulthood Not applicable
Short break Activities	Short break Activities Satisfied	Short break Activities Very Satisfied	Short break Activities Dissatisfied	Short break Activities Very Dissatisfied	Short break Activities No opinion	Short break Activities Not applicable
Over Night Respite	Over Night Respite Satisfied	Over Night Respite Very Satisfied	Over Night Respite Dissatisfied	Over Night Respite Very Dissatisfied	Over Night Respite No opinion	Over Night Respite Not applicable
Independent Living	Independent Living Satisfied	Independent Living Very Satisfied	Independent Living Dissatisfied	Independent Living Very Dissatisfied	Independent Living No opinion	Independent Living Not applicable
Supported Living	Supported Living Satisfied	Supported Living Very Satisfied	Supported Living Dissatisfied	Supported Living Very Dissatisfied	Supported Living No opinion	Supported Living Not applicable

What has gone well and what could be better?

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* 18. How easy do you find it to get information about what services are available and what they do?

Very easy

Easy

Neither easy nor difficult

Difficult

Very difficult

No Opinion

What has gone well and what could be better?

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* 19. Have you heard of the 0-25 SEND Local Offer:

Yes

What has gone well and what could be better?

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* 20. Have you used 0-25 Local Offer?

Yes

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* 21. If you have you used 0-25 Local Offer, how easy was it to use?

Very easy

Easy

Difficult

Very Difficult

No opinion

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* 22. How satisfied are you with:

	Satisfied	Very Satisfied	Dissatisfied	Very Dissatisfied	No opinion	Not applicable
Educational provision for young people who are 16+	Educational provision for young people who are 16+ Satisfied	Educational provision for young people who are 16+ Very Satisfied	Educational provision for young people who are 16+ Dissatisfied	Educational provision for young people who are 16+ Very Dissatisfied	Educational provision for young people who are 16+ No opinion	Educational provision for young people who are 16+ Not applicable
Educational Provision for people who are 19+	Educational Provision for people who are 19+ Satisfied	Educational Provision for people who are 19+ Very Satisfied	Educational Provision for people who are 19+ Dissatisfied	Educational Provision for people who are 19+ Very Dissatisfied	Educational Provision for people who are 19+ No opinion	Educational Provision for people who are 19+ Not applicable

What has gone well and what could be better?