Introduction and Background

We know how important it is to get the right support when you have a muscle-wasting condition. 

Our ‘Focus on Disability Benefits’ campaign aims to ensure that people with muscular dystrophy and neuromuscular conditions can access fair and informed assessments for support that meets their needs. This survey is about your experience of the application process for any benefits you receive.

We want to gather and understand your concerns to help build and shape our campaigning on accessing benefits and housing adaptations grants. Your stories and experiences are at the heart of this campaign to call on Government to improve access to benefits and grants needed to live independently.  
We would be grateful if you would take the time to fill out our short survey.

Thank you for your support. 

For information: Survey to be completed from the perspective of the individual with the muscle-wasting condition. If you are a family member/carer, please fill out the questions in this survey to the best of your knowledge on behalf of the individual with the muscle-wasting condition.

Some sections and questions may not be relevant to you. If this is the case please move on to the next one.