NHS England updated their guidance on the prescribing of liothyronine (T3) in July 2019 (https://www.sps.nhs.uk/wp-content/uploads/2019/07/RMOC-Liothyronine-guidance-V2.6-final-1.pdf).

The new guidance states that T3 can be prescribed to hypothyroid patients who have unresolved symptoms on the standard medication, levothyroxine, but that it should only be initiated by a thyroid specialist.

However, we are aware that in some instances, patients have not been able to access T3 and in a recent meeting with Lord Hunt, he requested that we gain information about Clinical Commissioning Groups (CCGs’) prescribing practices since the updated NHS England guidance, hence this survey (Clinical Commissioning Groups are responsible for the planning and purchasing of health care services for their local area which includes purchasing medications). 

This survey is only for people who live in England and for whom at least one of the following applies:

1.    Have had their T3 prescription withdrawn since 16th July 2019 despite it resolving symptoms

2.    Have had their T3 dosage reduced since 16th July 2019 despite their previous dosage resolving symptoms

3.    Have had their T3 prescription withdrawn before 16th July 2019 and then reinstated after that date

4.    Have had their T3 prescription withdrawn and also reinstated after 16th July 2019

5.    Have asked for T3 for the first time and been refused a prescription by their GP or endocrinologist since 16th July 2019

6.    Have asked for T3 for the first time and been given a prescription either by their GP or endocrinologist since 16th July 2019

This survey is being conducted by the authors of The Liothyronine Dossier  - Case Details with Clear Evidence that NHS England Guidance on Prescription of Liothyronine is not Being Followed by CCGshttps://drive.google.com/file/d/1c2AfuGKpHqIhzE7XrU_ivXbkzMJ2eXb2/view

We are not collecting any personal contact details as part of this survey. If you would like to talk to a researcher or patient organisation about your answers, please contact your preferred thyroid patient organisation.
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