Last year we conducted a survey asking patients, their carers and healthcare professionals what unanswered questions they had about lichen sclerosus.

There were 652 respondents who in total submitted 2,491 research questions!

With the help of our Steering Group we grouped together similar questions and summarised the wording. We now have a list of 38 research areas that have not already been answered. 

We are now asking you to help shorten this list by selecting the research areas that are most important to you.

What we are asking you to do?
We need you to select up to ten questions that matter to you the most from our list of 38 questions.  On the first page you can select all that you think are of interest to you and on the second page you will be asked to reduce your choices to 10 or less.

Why are we doing this?
We want to give you a louder voice in research. People living with lichen sclerosus, the people who care for them and the healthcare professionals who treat them know the issues that affect them the most. We want to ensure that research addresses these issues and will potentially have the greatest impact.

Please take part if you are:
­ A person who has lichen sclerosus
­ A parent/carer/partner or relative of someone who has lichen sclerosus
­ A healthcare professional working with people with lichen sclerosus
­ From an organisation representing the interests of people with lichen sclerosus.

Keeping your information secure
This is an anonymous survey but we will ask for a little information about you. This is so we can
understand who is responding and ensure we're reaching as broad a range of people as possible. We
won’t be able to identify you in any of the survey results. We will keep the information you give us secure.

Thank you for your interest in the Lichen Sclerosus Priority Setting Partnership.  We are really grateful for your contribution.  Further information about this project can be found on the website www.nottingham.ac.uk/go/lspsp

This survey should only take a few minutes to complete.
11% of survey complete.