Long Covid in CYP Healthcare Services Survey

The purpose of this survey is to collect information on the experience of NHS/HSE public health care for Long Covid and understand if and why other healthcare options are being used.
 
This survey data is being collected on behalf of the Long Covid Kids charity which focuses on recognition, support and recovery. 
 
We are keen to hear CYP experiences of NHS/HSE public Healthcare including Long Covid specific service(s) (where applicable) for those in England, Scotland, Wales, Northern Ireland and Ireland. A future survey will explore the healthcare experiences of CYP internationally.
 
This survey has been designed and developed by people who have Long Covid. Thanks go also to the research team at Long Covid Support who created the adult version of this survey, from which this is adapted.

In this survey, the term ‘Long Covid Service’ refers to any NHS service specifically dedicated to providing assessment, investigation, care and making further referrals for ‘Long Covid’ or ‘Post-Covid-19 Syndrome’. Services are often called a ‘Long Covid Clinic’ or 'Paediatric Long Covid Hub'.
 
The survey is detailed, we hope you will understand the importance of this data collection. It will take around 30-45 minutes to complete depending on your answers. You may save the survey and finish it later as long as you use the same device to complete it. Please complete a separate survey for each CYP with Long Covid. 
 
Before you start the survey it may be useful to have a calendar with key dates, any medical notes, test results (e.g. bloods) etc to hand.

There are no direct benefits from participating in this survey. However, your participation may be used to inform improvement of services. We will not collect any information that can identify you. We will use the data to produce reports for healthcare professionals, policy makers and interested stakeholder groups. We will ask for your consent to use your words anonymously. If you don't give consent, we will not quote your words in any reports. 
 
This survey will remain open to allow the continuous evaluation of patient experience. For the most recent report please go to www.longcovidkids.org

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* 1. This is being completed by or on behalf of a CYP currently aged:

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* 2. SURVEY CONSENT

Please select your choice below. You may wish to print a copy of this consent form for your records. Clicking on the “Agree” button indicates that:

  • You have read the above information
  • You voluntarily agree to participate
  • You are a parent or guardian, or, a young person aged 16 years of age or older

 
 3% of survey complete.

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