ITP Centre Satisfaction Survey

The ITP Support Association was instrumental in bringing together leading ITP clinicians in Sept 2011 for the purpose of establishing a network of recognised ITP centres of excellence around the UK. In the six years that have followed, many patients have requested referrals to these ITP Clinical Centres, and the Centre Directors are running a very active ITP Forum which coordinates their expertise to encourage better management, research and clinical trials.

We are now inviting patient feedback from those who attend these Centres to assess whether they are meeting your expectations.  ITP can be a difficult disease and as we recognise that it is more likely to be patients with problematic ITP who ask for a referral, we are interested in knowing about your overall experience of attending your ITP Centre rather than how successful they has been in raising your platelet count. If you or your child are being seen, or have been seen (even on a one off occasion) at an ITP Centre we would be most grateful if you would complete our survey. If you don’t have internet access you can still participate by answering the questions on the survey form opposite and posting it to the ITP office. Your answers will be kept confidential – only the result summaries will be shared with ITP Clinical Centres so they can continue to strive towards the highest of standards.

Please complete this survey if you have attended an ITP Clinical Centre (listed on the ITP Support Association website www.itpsupport.org.uk any time since September 2011.

(If you have been seen at more than one ITP Clinical Centre please fill in a separate form for each one)

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* 1. Centre Name:

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* 3. When did you last visit the Centre? (month/year)

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* 5. What is the name of the doctor in charge of your care?

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* 21. If you were referred to the Centre from your local hospital please list up to 3 reasons why you prefer the ITP Centre:-

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* 22. Do you have any suggestions for improvements that could be made at your ITP Centre?

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* 23. On a scale of 1 to 10 (1 = very poor, 10 = first class)) what number would you use to rate this ITP Clinical Centre.

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* 24. Comment

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