Rett UK Service Evaluation 2016 Survey

Your feedback is really important not only to us so we know what is working and what can be improved but also to our funders who need to know what difference their support has made to our families. Please spare a few minutes to answer these questions about our existing services over the last 12 months. You do not have to complete your name or provide contact details unless you would like one of the team to contact you with regards to your responses.

Very Good

Good

Average

Poor

Very Poor

Very Good

Good

Average

Poor

Very Poor

Very good

Good

Average

Poor

Very Poor

N/A

Very good

Good

Average

Poor

Very Poor

N/A

	Strongly Agree	Agree	Not relevant	Disagree	Strongly Disagree	N/A
Increased my understanding and knowledge of Rett syndrome	Increased my understanding and knowledge of Rett syndrome Strongly Agree	Increased my understanding and knowledge of Rett syndrome Agree	Increased my understanding and knowledge of Rett syndrome Not relevant	Increased my understanding and knowledge of Rett syndrome Disagree	Increased my understanding and knowledge of Rett syndrome Strongly Disagree	Increased my understanding and knowledge of Rett syndrome N/A
Increased my confidence in dealing with health and social care professionals	Increased my confidence in dealing with health and social care professionals Strongly Agree	Increased my confidence in dealing with health and social care professionals Agree	Increased my confidence in dealing with health and social care professionals Not relevant	Increased my confidence in dealing with health and social care professionals Disagree	Increased my confidence in dealing with health and social care professionals Strongly Disagree	Increased my confidence in dealing with health and social care professionals N/A
Helped me feel less isolated	Helped me feel less isolated Strongly Agree	Helped me feel less isolated Agree	Helped me feel less isolated Not relevant	Helped me feel less isolated Disagree	Helped me feel less isolated Strongly Disagree	Helped me feel less isolated N/A
Helped me to cope in difficult times	Helped me to cope in difficult times Strongly Agree	Helped me to cope in difficult times Agree	Helped me to cope in difficult times Not relevant	Helped me to cope in difficult times Disagree	Helped me to cope in difficult times Strongly Disagree	Helped me to cope in difficult times N/A
Helped me get the appropriate care/treatment/support for the person I care for	Helped me get the appropriate care/treatment/support for the person I care for Strongly Agree	Helped me get the appropriate care/treatment/support for the person I care for Agree	Helped me get the appropriate care/treatment/support for the person I care for Not relevant	Helped me get the appropriate care/treatment/support for the person I care for Disagree	Helped me get the appropriate care/treatment/support for the person I care for Strongly Disagree	Helped me get the appropriate care/treatment/support for the person I care for N/A

Strongly Agree

Agree

Not relevant

Disagree

Strongly Disagree

N/A

Increased my understanding and knowledge of Rett syndrome

Increased my understanding and knowledge of Rett syndrome Strongly Agree

Increased my understanding and knowledge of Rett syndrome Agree

Increased my understanding and knowledge of Rett syndrome Not relevant

Increased my understanding and knowledge of Rett syndrome Disagree

Increased my understanding and knowledge of Rett syndrome Strongly Disagree

Increased my understanding and knowledge of Rett syndrome N/A

Increased my confidence in dealing with health and social care professionals

Increased my confidence in dealing with health and social care professionals Strongly Agree

Increased my confidence in dealing with health and social care professionals Agree

Increased my confidence in dealing with health and social care professionals Not relevant

Increased my confidence in dealing with health and social care professionals Disagree

Increased my confidence in dealing with health and social care professionals Strongly Disagree

Increased my confidence in dealing with health and social care professionals N/A

Helped me feel less isolated

Helped me feel less isolated Strongly Agree

Helped me feel less isolated Agree

Helped me feel less isolated Not relevant

Helped me feel less isolated Disagree

Helped me feel less isolated Strongly Disagree

Helped me feel less isolated N/A

Helped me to cope in difficult times

Helped me to cope in difficult times Strongly Agree

Helped me to cope in difficult times Agree

Helped me to cope in difficult times Not relevant

Helped me to cope in difficult times Disagree

Helped me to cope in difficult times Strongly Disagree

Helped me to cope in difficult times N/A

Helped me get the appropriate care/treatment/support for the person I care for

Helped me get the appropriate care/treatment/support for the person I care for Strongly Agree

Helped me get the appropriate care/treatment/support for the person I care for Agree

Helped me get the appropriate care/treatment/support for the person I care for Not relevant

Helped me get the appropriate care/treatment/support for the person I care for Disagree

Helped me get the appropriate care/treatment/support for the person I care for Strongly Disagree

Helped me get the appropriate care/treatment/support for the person I care for N/A

	Very Good	Good	Average	Poor	Very Poor	N/A
Telephone Electronic Support Services (helpline, email and social media support)	Telephone Electronic Support Services (helpline, email and social media support) Very Good	Telephone Electronic Support Services (helpline, email and social media support) Good	Telephone Electronic Support Services (helpline, email and social media support) Average	Telephone Electronic Support Services (helpline, email and social media support) Poor	Telephone Electronic Support Services (helpline, email and social media support) Very Poor	Telephone Electronic Support Services (helpline, email and social media support) N/A
Regional Events	Regional Events Very Good	Regional Events Good	Regional Events Average	Regional Events Poor	Regional Events Very Poor	Regional Events N/A
Family Weekend	Family Weekend Very Good	Family Weekend Good	Family Weekend Average	Family Weekend Poor	Family Weekend Very Poor	Family Weekend N/A
Transition Project	Transition Project Very Good	Transition Project Good	Transition Project Average	Transition Project Poor	Transition Project Very Poor	Transition Project N/A
Fundraising Support	Fundraising Support Very Good	Fundraising Support Good	Fundraising Support Average	Fundraising Support Poor	Fundraising Support Very Poor	Fundraising Support N/A

Very Good

Good

Average

Poor

Very Poor

N/A

Telephone Electronic Support Services (helpline, email and social media support)

Telephone Electronic Support Services (helpline, email and social media support) Very Good

Telephone Electronic Support Services (helpline, email and social media support) Good

Telephone Electronic Support Services (helpline, email and social media support) Average

Telephone Electronic Support Services (helpline, email and social media support) Poor

Telephone Electronic Support Services (helpline, email and social media support) Very Poor

Telephone Electronic Support Services (helpline, email and social media support) N/A

Regional Events

Regional Events Very Good

Regional Events Good

Regional Events Average

Regional Events Poor

Regional Events Very Poor

Regional Events N/A

Family Weekend

Family Weekend Very Good

Family Weekend Good

Family Weekend Average

Family Weekend Poor

Family Weekend Very Poor

Family Weekend N/A

Transition Project

Transition Project Very Good

Transition Project Good

Transition Project Average

Transition Project Poor

Transition Project Very Poor

Transition Project N/A

Fundraising Support

Fundraising Support Very Good

Fundraising Support Good

Fundraising Support Average

Fundraising Support Poor

Fundraising Support Very Poor

Fundraising Support N/A

	Very Good	Good	Average	Poor	Very Poor	N/A
Rett UK Website	Rett UK Website Very Good	Rett UK Website Good	Rett UK Website Average	Rett UK Website Poor	Rett UK Website Very Poor	Rett UK Website N/A
Rett News	Rett News Very Good	Rett News Good	Rett News Average	Rett News Poor	Rett News Very Poor	Rett News N/A
Best Practice Guidelines	Best Practice Guidelines Very Good	Best Practice Guidelines Good	Best Practice Guidelines Average	Best Practice Guidelines Poor	Best Practice Guidelines Very Poor	Best Practice Guidelines N/A
The Family Companion	The Family Companion Very Good	The Family Companion Good	The Family Companion Average	The Family Companion Poor	The Family Companion Very Poor	The Family Companion N/A
Facebook	Facebook Very Good	Facebook Good	Facebook Average	Facebook Poor	Facebook Very Poor	Facebook N/A
Twitter	Twitter Very Good	Twitter Good	Twitter Average	Twitter Poor	Twitter Very Poor	Twitter N/A
E Newsletter	E Newsletter Very Good	E Newsletter Good	E Newsletter Average	E Newsletter Poor	E Newsletter Very Poor	E Newsletter N/A

Very Good

Good

Average

Poor

Very Poor

N/A

Rett UK Website

Rett UK Website Very Good

Rett UK Website Good

Rett UK Website Average

Rett UK Website Poor

Rett UK Website Very Poor

Rett UK Website N/A

Rett News

Rett News Very Good

Rett News Good

Rett News Average

Rett News Poor

Rett News Very Poor

Rett News N/A

Best Practice Guidelines

Best Practice Guidelines Very Good

Best Practice Guidelines Good

Best Practice Guidelines Average

Best Practice Guidelines Poor

Best Practice Guidelines Very Poor

Best Practice Guidelines N/A

The Family Companion

The Family Companion Very Good

The Family Companion Good

The Family Companion Average

The Family Companion Poor

The Family Companion Very Poor

The Family Companion N/A

Facebook

Facebook Very Good

Facebook Good

Facebook Average

Facebook Poor

Facebook Very Poor

Facebook N/A

Twitter

Twitter Very Good

Twitter Good

Twitter Average

Twitter Poor

Twitter Very Poor

Twitter N/A

E Newsletter

E Newsletter Very Good

E Newsletter Good

E Newsletter Average

E Newsletter Poor

E Newsletter Very Poor

E Newsletter N/A

	Extremely Important	Important	Of some importance	Not important	Not relevant or applicable to me
Improving local support through regional events	Improving local support through regional events Extremely Important	Improving local support through regional events Important	Improving local support through regional events Of some importance	Improving local support through regional events Not important	Improving local support through regional events Not relevant or applicable to me
Developing the Parent to Parent Contact Network	Developing the Parent to Parent Contact Network Extremely Important	Developing the Parent to Parent Contact Network Important	Developing the Parent to Parent Contact Network Of some importance	Developing the Parent to Parent Contact Network Not important	Developing the Parent to Parent Contact Network Not relevant or applicable to me
Sibling Support	Sibling Support Extremely Important	Sibling Support Important	Sibling Support Of some importance	Sibling Support Not important	Sibling Support Not relevant or applicable to me
Local Support Groups	Local Support Groups Extremely Important	Local Support Groups Important	Local Support Groups Of some importance	Local Support Groups Not important	Local Support Groups Not relevant or applicable to me
Transition Support	Transition Support Extremely Important	Transition Support Important	Transition Support Of some importance	Transition Support Not important	Transition Support Not relevant or applicable to me
Webinars with our professionals	Webinars with our professionals Extremely Important	Webinars with our professionals Important	Webinars with our professionals Of some importance	Webinars with our professionals Not important	Webinars with our professionals Not relevant or applicable to me
Dedicated legal helpline	Dedicated legal helpline Extremely Important	Dedicated legal helpline Important	Dedicated legal helpline Of some importance	Dedicated legal helpline Not important	Dedicated legal helpline Not relevant or applicable to me
Developing information/resources	Developing information/resources Extremely Important	Developing information/resources Important	Developing information/resources Of some importance	Developing information/resources Not important	Developing information/resources Not relevant or applicable to me

Extremely Important

Important

Of some importance

Not important

Not relevant or applicable to me

Improving local support through regional events

Improving local support through regional events Extremely Important

Improving local support through regional events Important

Improving local support through regional events Of some importance

Improving local support through regional events Not important

Improving local support through regional events Not relevant or applicable to me

Developing the Parent to Parent Contact Network

Developing the Parent to Parent Contact Network Extremely Important

Developing the Parent to Parent Contact Network Important

Developing the Parent to Parent Contact Network Of some importance

Developing the Parent to Parent Contact Network Not important

Developing the Parent to Parent Contact Network Not relevant or applicable to me

Sibling Support

Sibling Support Extremely Important

Sibling Support Important

Sibling Support Of some importance

Sibling Support Not important

Sibling Support Not relevant or applicable to me

Local Support Groups

Local Support Groups Extremely Important

Local Support Groups Important

Local Support Groups Of some importance

Local Support Groups Not important

Local Support Groups Not relevant or applicable to me

Transition Support

Transition Support Extremely Important

Transition Support Important

Transition Support Of some importance

Transition Support Not important

Transition Support Not relevant or applicable to me

Webinars with our professionals

Webinars with our professionals Extremely Important

Webinars with our professionals Important

Webinars with our professionals Of some importance

Webinars with our professionals Not important

Webinars with our professionals Not relevant or applicable to me

Dedicated legal helpline

Dedicated legal helpline Extremely Important

Dedicated legal helpline Important

Dedicated legal helpline Of some importance

Dedicated legal helpline Not important

Dedicated legal helpline Not relevant or applicable to me

Developing information/resources

Developing information/resources Extremely Important

Developing information/resources Important

Developing information/resources Of some importance

Developing information/resources Not important

Developing information/resources Not relevant or applicable to me

Rett UK Service Evaluation 2016

Existing Services

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* 1. Overall how would you rate the services provided by Rett UK?

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* 2. Overall, how would you rate the support provided by our staff and volunteers?

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* 3. Please let us know how we have helped and supported you and your family.

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* 4. Please can you rate the following specific services provided by Rett UK (in the last 12 months)

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* 5. Please good you rate the following resources provided by Rett UK (in the last 12 months)

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* 6. Based on last year's family consultation we are currently seeking funding for certain projects. It is really helpful for funders to understanding the importance of the work we are asking them to support. Please could you rate the importance, to you and your family, of the following work.

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* 7. Please can you let us know if you are a member of Rett UK. Membership is free as is Rett News and the E Newsletter although donations are welcome. Sign up online www.rettuk.org.

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* 8. If you would like one of our team to contact you with regard to membership please complete your name and telephone number and/or email address. Thanks.

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* 9. Please could you let us know in what capacity you are completing the survey.