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* 11. Why did you decide to do this first?
Please tick ALL that apply

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* 19. Which of the following do you use tofind out information about sickle celldisorder?
Please tick ALL that apply

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* 31. Does sickle cell disorder cause your childdifficulty with any of the following?
Please tick ALL that apply

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* 32. How old is your child (in years)?

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* 35. Please provide us with the FIRST part(i.e. OX3, OX17) of your post code:
(This is to help us see if there are differences in care around the country) 7

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* 36. Please describe in three words how living with sickle cell disorder makes youand your child feel.

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* 37. Is there anything that is particularly good about the care your child receives for their sickle cell disorder?

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* 38. Is there anything about the care your child receives for their sickle cell disorder that could be better?

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